Pulmonary Fibrosis Foundation Community Registry
This is an observational study, meaning it doesn't test a new medicine or treatment, but rather collects information about people living with pulmonary fibrosis (PF) and related lung conditions. You can join if you are 18 or older and have PF, or if you are a caregiver or family member of someone with PF. The goal is to gather information from 10,000 patients, caregivers, and family members over three years to help researchers better understand PF. This study is currently open for enrollment.
- Study design
- This is an observational, longitudinal cohort study that aims to enroll 10,000 participants.
- What's involved
- You would self-enroll online and contribute data by answering a series of surveys at regular intervals.
- Compensation
- Not stated in the trial record.
- Follow-up
- The study aims to measure the number of enrolled participants at 3 years.
AI-generated from the public study record. Only the study team can confirm whether you're eligible — confirm details with them before making decisions.
Pulmonary Fibrosis Foundation Community Registry
At a glance
Conditions
Where it's being run
1 sites across 1 statesStudy leadership
- Kevin R Flaherty, MD · STUDY_CHAIR · Pulmonary Fibrosis Foundation
Who to contact
Opens a ready-to-send draft in your own email app — review before sending.
Do you actually qualify for this trial?
Add a private profile and we'll compare every criterion below against your situation — and tell you which ones are met, uncertain, or excluding.
Exclusion
What this trial measures
- Number of patients who have or had interstitial lung disease (ILD) enrolled in the PFF Community Registry3 years
- Number of caregivers of patients who have or had ILD enrolled in the PFF Community Registry3 years
- Number of family members of patients who have or had ILD enrolled in the PFF Community Registry3 years