Interstitial Lung Disease Research Unit Biobank

This study is creating a collection of information and samples from people with interstitial lung disease (ILD), which are conditions that cause scarring of the lungs. This includes conditions like sarcoidosis, idiopathic pulmonary fibrosis, pulmonary fibrosis, and hypersensitivity pneumonitis. The goal is to better understand these diseases, find ways to diagnose them earlier, and discover new treatment targets. You may be able to join if you are 18 or older, are a patient at TUKHS (The University of Kansas Health System), and are being followed for an autoimmune disease, ILD, or other rare lung diseases. The study is collecting clinical data and biological samples over a period of up to 10 years to help with research.

Study design
This is an observational study, meaning participants are not given any specific intervention or treatment. It aims to enroll 1000 participants.
What's involved
Not specified in the trial record.
Compensation
Not stated in the trial record.
Follow-up
Participants' data and samples will be collected from enrollment up to 10 years.

AI-generated from the public study record. Only the study team can confirm whether you're eligible — confirm details with them before making decisions.

NCT05392881

Interstitial Lung Disease Research Unit Biobank

Recruiting
Not specifiedAges 18+Observational
University of Kansas Medical Center
~1,000 participants
Updated 2026-07-10 on ClinicalTrials.gov

At a glance

Recruiting sites
1 of 1 listed site is recruiting right now
RecruitingSuspended, closed, or not yet open
What they're measuring
Collect clinically obtained data for patients with ILD, RLD and risk for ILD/RLD to support research.
Measured over Enrollment to Year 10
+4 more outcomes measured
Interstitial Lung Disease
Sarcoidosis
Idiopathic Pulmonary Fibrosis
Pulmonary Fibrosis
Hypersensitivity Pneumonitis
1 sites across 1 states
Kansas1
  • Scott Matson, M.D. · PRINCIPAL_INVESTIGATOR · University of Kansas Medical Center

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  • Collect clinically obtained data for patients with ILD, RLD and risk for ILD/RLD to support research.Enrollment to Year 10
  • Establish a collection of biological samples from patients with ILD, RLD and subjects at risk for ILD.Enrollment to Year 10
  • Correlate biological samples with individual longitudinal clinical data.Enrollment to Year 10
  • Provide biological samples to researchers performing studies in ILD and RLD.Enrollment to Year 10
  • Collect historical data and imaging from deceased patients with ILD.Enrollment to Year 10