Improving Communication for Spanish-speaking Families with Leukemia or Lymphoma

This study aims to improve communication and support for Spanish-speaking families whose children (ages 0-22) are being treated for leukemia or non-Hodgkin lymphoma at the Center for Cancer and Blood Disorders (CCBD). The study involves interviews with patients and their parents or guardians to understand their experiences and satisfaction with care. The goal is to increase families' understanding of their child's medical condition, improve their involvement in care, and ensure they receive comprehensive medical support. Researchers will measure patient and family satisfaction with care, and how language barriers affect their needs, over 12 months. This is an observational study, meaning no new treatments are being tested. The study is currently recruiting 20 participants, but its overall status is unclear.

Study design
This is an observational study involving 20 participants. It is not specified if it is randomized or blinded.
What's involved
If you are interested, you and your child will participate in an interview conducted by a bilingual Spanish-certified provider via televideo. These interviews will be audio recorded for review and translation.
Compensation
Not stated in the trial record.
Follow-up
The study will assess satisfaction and the effects of language barriers over 12 months.

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NCT05425992

Improving Communication and Building a Stronger Medical Home Among Spanish-speaking Families

Recruiting
Not specifiedUp to 22Observational
University of Colorado, Denver
~20 participants
Updated 2026-02-05 on ClinicalTrials.gov
What's tested:Interview

At a glance

Recruiting sites
1 of 1 listed site is recruiting right now
RecruitingSuspended, closed, or not yet open
What they're measuring
Determine a baseline level of Spanish speaking patient satisfaction of care
Measured over 12 months
+4 more outcomes measured
Leukemia
Non Hodgkin Lymphoma
1 sites across 1 states
Colorado1
  • Ashley Rogers · PRINCIPAL_INVESTIGATOR · Children's Hospital Colorado

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Eligibility criteria

Inclusion

0 to 22 years of age
Diagnosis of leukemia or non-Hodgkin lymphoma
Spanish as preferred language for patient, parent or guardian
Received or receiving care at the Center for Cancer and Blood Disorders (CCBD)

Exclusion

Patients without oncologic diagnosis
Patients with parents whose language preference is English
Patients who received care solely outside of the CCBD
  • Determine a baseline level of Spanish speaking patient satisfaction of care12 months

    Understand the patient experience using qualitative interview of Spanish speaking patients and families Determine satisfaction based on open-ended question with unsatisfied to satisfied as markers.

  • Determine a baseline level of Spanish Speaking family satisfaction of care12 months

    Understand the patient experience using qualitative interview of Spanish speaking patients and families Determine satisfaction based on open-ended question with unsatisfied to satisfied as markers.

  • Determine effects of language barrier on Spanish speaking patient needs12 months

    Understand the patient experience using qualitative interview of Spanish speaking patients and families. Determine satisfaction based on open-ended question to determine a list or pattern of common patient needs.

  • Determine the effect of language barrier on barriers to patient care12 months

    Understand the patient experience using qualitative interview of Spanish speaking patients and families. Determine satisfaction based on open-ended question to determine a list or pattern of common barriers to patient care.

  • Effect of language barrier on efficiency of access to care12 months

    Understand the patient experience using qualitative interview of Spanish speaking patients and families. Determine satisfaction based on open-ended question to determine how quickly patient was able to receive care.