CIMR Neuromuscular Research Biobank
This study is creating a collection, or biobank, of tissue samples from people with neuromuscular diseases. The goal is to gather and store various samples like blood, skin cells, and muscle tissue from individuals with all types of neuromuscular diseases, as well as healthy volunteers. These samples will be stored at Virginia Commonwealth University (VCU) and shared with other researchers to help them learn more about these conditions. Anyone from newborns to 75 years old with a diagnosed or suspected neuromuscular disease, a family history of it, or healthy individuals can join. The main goal is to successfully collect, store, and share these donated tissues with other researchers. The current recruitment status is unclear.
- Study design
- This is an observational study aiming to enroll 500 participants. It is not testing a specific treatment but rather collecting information and samples.
- What's involved
- You would provide medical information about yourself and your family, and have the opportunity to donate samples like blood, skin cells, urine, saliva, fecal matter, muscle tissue, cells, DNA, and/or RNA.
- Compensation
- Not stated in the trial record.
- Follow-up
- Not specified.
AI-generated from the public study record. Only the study team can confirm whether you're eligible — confirm details with them before making decisions.
CIMR Neuromuscular Research Biobank
At a glance
Conditions
Where it's being run
1 sites across 1 statesStudy leadership
- Nicholas E. Johnson, MD · PRINCIPAL_INVESTIGATOR · Virginia Commonwealth University
Who to contact
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Do you actually qualify for this trial?
Add a private profile and we'll compare every criterion below against your situation — and tell you which ones are met, uncertain, or excluding.
Inclusion
Exclusion
What this trial measures
- To collect, store, and share with other researchers any tissues that subjects with all types of neuromuscular disease are willing to donate.Baseline
Subjects will have the opportunity to provide the following samples: saliva or cheek swab, urine sample (up to 15ml), feces (up to 2mg of a stool sample), blood (up to 40ml), muscle biopsy tissue, and cell line (subjects have the option to allow a cell line to be made from their blood, muscle, or skin biopsies to provide a renewable supply of DNA and other cell components for research)