The KidneyCARE (Community Access to Research Equity) Study

The KidneyCARE Study is a nationwide effort to better understand chronic kidney disease (CKD), including those on dialysis or with a kidney transplant. This is an observational study, meaning you won't take new medications or have extra tests. Instead, you'll share your health information and experiences through a secure online portal. The study also gathers information from your electronic health records. Researchers hope to enroll 50,000 people to create a powerful platform for research and advocacy. You may be able to join if you are 18 or older and have any stage of CKD. The main goal is to see how many people enroll over five years.

Study design
This is a large observational study aiming to enroll 50,000 participants. It collects information from electronic health records and directly from participants.
What's involved
You will be asked to share personal and health information, and your experiences with your disease through a secure portal.
Compensation
Not stated in the trial record.
Follow-up
The primary endpoint, total number of enrolled participants, is measured at 5 years. This suggests a follow-up period of at least 5 years.

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NCT05497518

The KidneyCARE (Community Access to Research Equity) Study

Recruiting
Not specifiedAges 18+Observational
Tufts Medical Center
~50,000 participants
Updated 2025-05-13 on ClinicalTrials.gov
What's tested:Observational study - registry

At a glance

Recruiting sites
1 of 1 listed site is recruiting right now
RecruitingSuspended, closed, or not yet open
What they're measuring
Total number of enrolled participants
Measured over 5 years
Chronic Kidney Disease
Dialysis
Kidney Transplant
1 sites across 1 states
Pennsylvania1
  • Kerry Willis, PhD · STUDY_DIRECTOR · National Kidney Foudnation

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Do you actually qualify for this trial?

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Eligibility criteria

Inclusion

Patients with any stage of CKD, including kidney transplant recipients and patients on dialysis.
Age 18 years and above.
Willing to participate in the Study and complete the informed consent form and assent form (where applicable).
Able to participate in this Study, which initially will be in English and then eventually expand to other languages.
Patients affiliated with Geisinger Health System must have given their consent to Geisinger Health System IRB to be contacted for research projects.

Exclusion

Patient not diagnosed with CKD
Age below 18 years
Not willing to participate in the Study as well as unwilling to complete the informed consent form
  • Total number of enrolled participants5 years

    Reach 10,000 enrolled participants