The KidneyCARE (Community Access to Research Equity) Study
The KidneyCARE Study is a nationwide effort to better understand chronic kidney disease (CKD), including those on dialysis or with a kidney transplant. This is an observational study, meaning you won't take new medications or have extra tests. Instead, you'll share your health information and experiences through a secure online portal. The study also gathers information from your electronic health records. Researchers hope to enroll 50,000 people to create a powerful platform for research and advocacy. You may be able to join if you are 18 or older and have any stage of CKD. The main goal is to see how many people enroll over five years.
- Study design
- This is a large observational study aiming to enroll 50,000 participants. It collects information from electronic health records and directly from participants.
- What's involved
- You will be asked to share personal and health information, and your experiences with your disease through a secure portal.
- Compensation
- Not stated in the trial record.
- Follow-up
- The primary endpoint, total number of enrolled participants, is measured at 5 years. This suggests a follow-up period of at least 5 years.
AI-generated from the public study record. Only the study team can confirm whether you're eligible — confirm details with them before making decisions.
The KidneyCARE (Community Access to Research Equity) Study
At a glance
Conditions
Where it's being run
1 sites across 1 statesStudy leadership
- Kerry Willis, PhD · STUDY_DIRECTOR · National Kidney Foudnation
Who to contact
Opens a ready-to-send draft in your own email app — review before sending.
Do you actually qualify for this trial?
Add a private profile and we'll compare every criterion below against your situation — and tell you which ones are met, uncertain, or excluding.
Inclusion
Exclusion
What this trial measures
- Total number of enrolled participants5 years
Reach 10,000 enrolled participants