Interview Study for Nephrotic Syndrome Swelling
This study is looking for adults and children with swelling (edema) from Nephrotic Syndrome, as well as parents of young children with this condition. Researchers want to understand your experiences with swelling. You would participate in a 1-hour interview. The information gathered will help create new surveys to measure how well future medications for Nephrotic Syndrome work. The goal is to develop tools that can be used in drug development to better understand the impact of fluid overload. This is an observational study, meaning no new treatments are being tested. The study aims to enroll 150 participants, but its current recruitment status is unclear.
- Study design
- This is an observational study involving interviews. It aims to enroll 150 participants.
- What's involved
- You would participate in a 1-hour interview to discuss experiences with swelling.
- Compensation
- Not stated in the trial record.
- Follow-up
- Not specified.
AI-generated from the public study record. Only the study team can confirm whether you're eligible — confirm details with them before making decisions.
Interview Study of Adult and Child Patients and Parents of Children With Swelling Due to Nephrotic Syndrome.
At a glance
Conditions
Where it's being run
1 sites across 1 statesStudy leadership
- Eloise Salmon, M.D. · PRINCIPAL_INVESTIGATOR · University of Michigan
- John Peipert, Ph.D. · PRINCIPAL_INVESTIGATOR · Northwestern University
Who to contact
Opens a ready-to-send draft in your own email app — review before sending.
What this trial measures
- Patient Reported Impact of Fluid Overload on symptoms and functioningInterviews are 60 minutes
Themes generated through qualitative analysis from semi-structured interviews
- Observer Reported Impact of Fluid Overload on symptoms and functioningInterviews are 60 minutes
Themes generated through qualitative analysis from semi-structured interviews