Parkinson's Disease in Asian Americans Study
This study is looking at Parkinson's Disease (PD) in Asian Americans. It's an observational study, meaning researchers will gather information through interviews and surveys, rather than testing a new treatment. The goal is to understand why some Asian Americans with PD might delay seeking care. Researchers want to learn about things like language barriers, cultural beliefs, and family influence that might play a role. This information will help create better programs and resources to improve access to PD care and encourage more Asian Americans to participate in PD research. The study aims to enroll 430 participants.
- Study design
- This is an observational study, meaning researchers will gather information without providing a specific treatment. It aims to include 430 participants.
- What's involved
- Participants will take part in qualitative interviews and surveys.
- Compensation
- Not stated in the trial record.
- Follow-up
- The primary endpoint, delay in seeking care, is measured between November 2022 and August 2024.
AI-generated from the public study record. Only the study team can confirm whether you're eligible — confirm details with them before making decisions.
Parkinson's Disease in Asian Americans
At a glance
Conditions
NCT05532982
Where you'd take part
This study runs at 1 site. They're the same protocol — you choose where, and that choice sets who your contact draft is addressed to.
Tufts University School of Medicine
Boston, Massachusettsstudy coordinator listed
Recruiting
Sites open and close at different times, so the status above is per site — it can differ from the study's overall status.
Who to contact
Opens a ready-to-send draft in your own email app — review before sending.
Want this trial checked against your situation?
Add a private profile and we'll compare every criterion below against your situation — and tell you which ones are met, uncertain, or excluding.
Inclusion
What this trial measures
- Delay in seeking careNovember 2022 - August 2024
For the main outcome (delay in seeking care), the investigators will rely on self-report. Data obtained from Objectives 1 and 2 will be used to inform the development of a survey question (or a series of questions) that will capture this construct. The questionnaire will be piloted among a subgroup of participants recruited from the TMC MDC to calibrate the self-reported measure against data obtained from their medical records.