This study is creating a registry, which is a list of people interested in research for CADASIL (Cerebral Autosomal Dominant Arteriopathy with Subcortical Infarcts and Leukoencephalopathy). CADASIL is a genetic condition that affects blood vessels in the brain. You can join if you are 18 or older and have a loved one with CADASIL, or if you are at risk for CADASIL yourself. The goal is to build a list of potential participants for future CADASIL research studies, which will be maintained for up to 20 years. This registry helps researchers connect with people who might be a good fit for their studies.

Study design

This is an observational study that aims to enroll 2500 participants. It is a registry, which means it collects information to help identify people for future research.

What's involved

Participation means your name will be added to a list of people who may be invited to participate in future research studies. You will remain on the registry until you ask to be removed.

Compensation

Not stated in the trial record.

Follow-up

Participants will remain on the registry for up to 20 years, or until they request to be removed.

AI-generated from the public study record. Only the study team can confirm whether you're eligible — confirm details with them before making decisions.