Promoting Goals-of-Care Discussions for Patients With Memory Problems and Their Caregivers

This study aims to improve how doctors, patients with memory problems (like dementia or Alzheimer's disease), and their families talk about healthcare goals. We are testing a tool called the "Jumpstart Guide." This guide helps doctors have these important conversations during regular clinic visits. We want to see if using the Jumpstart Guide leads to more discussions about your healthcare wishes, which would be recorded in your medical chart. You may be eligible if you are 55 or older, receive care at a UW Medicine clinic, and have a diagnosis of a memory problem. The study is comparing patients whose doctors receive the guide to those whose doctors do not.

Study design: This is a randomized study involving about 1802 participants. Participants are assigned by chance to either receive the Jumpstart Guide intervention or usual care.
What's involved: If you agree to participate, your doctor may receive a Jumpstart Guide before your clinic visit. You may also be asked to complete surveys.
Compensation: Not stated in the trial record.
Follow-up: The study will look at your medical records for documentation of goals-of-care discussions 90 days after you are assigned to a study group.

AI-generated from the public study record. Only the study team can confirm whether you're eligible — confirm details with them before making decisions.

Promoting Goals-of-Care Discussions for Patients With Memory Problems and Their Caregivers

Active, Not Recruiting

NAAges 18+InterventionalSupportive care

University of Washington

~1,802 participants

Updated 2026-06-25 on ClinicalTrials.gov

What's tested:Jumpstart Guide

At a glance

Recruiting sites

0 of 3 listed sites are recruiting right now

RecruitingSuspended, closed, or not yet open

What they're measuring

EHR documentation of Goals of Care discussions

Measured over 90 days following randomization

Conditions

Dementia

Dementia, Vascular

Mixed Dementias

Alzheimer Disease

Huntington Disease

Lewy Body Disease

Creutzfeldt-Jakob Syndrome

Frontotemporal Lobar Degeneration

Cognitive Dysfunction

Cognitive Aging

Chronic Disease

Palliative Care, Patient Care

Health Care Quality, Access, and Evaluation

Patient Care

Health Communication

Patient Care Planning

Quality of Life

Where it's being run

3 sites across 1 states

Washington3

Study leadership

Erin Kross, MD · PRINCIPAL_INVESTIGATOR · University of Washington

Who to contact

This trial hasn't published a contact. View it on ClinicalTrials.gov

Do you actually qualify for this trial?

Add a private profile and we'll compare every criterion below against your situation — and tell you which ones are met, uncertain, or excluding.

Check eligibility for this trial ~2 min · HIPAA-protected · delete anytime

Eligibility criteria

Inclusion

Be cared for as an outpatient at a UW Medicine clinic

55 years of age or older

Have an ICD-10 code for ADRD documented in the EHR within the prior two years

Identified (via the patient or the EHR) as the person most involved in care for an eligible patient in the trial

18 years of age or older

English language proficiency

Physician or advance practice provider caring for older adults within UW Medicine clinics

18 years of age or older

English language proficiency

(Interviews) Identified as clinician of record for an enrolled patient in the trial and received a Jumpstart guide

Exclusion

restricted status, legal or risk management concerns

without capacity to complete informed consent procedures and without a legal surrogate to enroll them (for the survey component or qualitative interviews)

non-English speaking (for the survey component or qualitative interviews)

patients of a clinician who has opted-out of the study will not be eligible for the study under the care of that clinician but may be eligible if they also receive care from another clinician in a participating clinic

legal or risk management concerns

psychological illness or morbidity preventing completion of study materials

physical or mental limitations preventing completion of study materials

non-English speaking

legal or risk management concerns

What this trial measures

EHR documentation of Goals of Care discussions90 days following randomization
The primary outcome is the proportion of patients who have a goals-of-care discussion that has been documented in the EHR in the period by 90 days following randomization. The proportion is the number of patients with GOC documentation over the number of patients in each study arm.

Trialytics