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Mobile App for Childhood Cancer Survivors' Follow-Up Care

This study is testing a new mobile app designed to help childhood cancer survivors, or their caregivers, manage their long-term follow-up care. The app provides access to treatment history and recommendations, aiming to improve understanding of their diagnosis, past treatments, future risks, and necessary follow-up care. Researchers want to see if using this "survivorship mobile application" helps survivors and caregivers better understand their health information and follow-up needs. The study is also looking at how easy and useful the app is to use. This study is for childhood cancer survivors or their caregivers who attend the Survivorship Clinic at UCSF and have a smartphone or tablet.

Study design
This study is testing a new mobile app with 30 participants. It is an interventional study, meaning participants will use the app.
What's involved
You would use the survivorship mobile application for 4 months. You will also complete questionnaires about cancer knowledge and app usability.
Compensation
Not stated in the trial record.
Follow-up
Your knowledge will be assessed for up to 4 months after starting the study.

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NCT05641961

Mobile App to Help Survivors of Childhood Cancer Navigate Long-Term Follow-Up Care

Recruiting
NAAll AgesInterventionalHealth services
University of California, San Francisco
~30 participants
Updated 2025-07-23 on ClinicalTrials.gov
What's tested:Survivorship mobile applicationQuestionnaires

At a glance

Recruiting sites
1 of 1 listed site is recruiting right now
RecruitingSuspended, closed, or not yet open
What they're measuring
Change in knowledge questionnaire score
Measured over Up to 4 months

Conditions

Childhood Cancer
Hematopoietic and Lymphoid Cell Neoplasm
Malignant Solid Neoplasm

Explore related trials

Childhood Malignant NeoplasmHematopoietic and Lymphoid Cell NeoplasmMalignant Solid Neoplasm

Where it's being run

1 sites across 1 states
California1

Study leadership

  • Robert Goldsby, MD · PRINCIPAL_INVESTIGATOR · University of California, San Francisco

Who to contact

Patricia Murphy, RN
[email protected]
(415) 476-2700
Email the study team

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Do you actually qualify for this trial?

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Eligibility criteria

Inclusion

Survivors of childhood cancer attending Survivorship Clinic at University of California, San Francisco (UCSF) OR caregivers of a childhood cancer survivor attending Survivorship Clinic at UCSF.
Must have a mobile device (smartphone or smart-tablet) with service plan.
Must have ability to read, write, and understand English language.

Exclusion

An individual who does not meet any of the criteria mentioned above will be excluded from participation in this study.

What this trial measures

  • Change in knowledge questionnaire scoreUp to 4 months

    The knowledge of the participant will be measured using a 12-item questionnaire that assesses the awareness of their treatment and health issues in four categories: (1) diagnosis, (2) treatment, (3) risks, and (4) recommended follow-up. A scoring system has been devised which will give a score to each questionnaire out of 100 possible points. The change in participants knowledge scores \>=20 points from baseline will be reported.