Acceptance and Commitment Therapy for Adolescents and Young Adults With Sickle Cell Disease
This study is looking at a behavioral therapy called Acceptance and Commitment Therapy (ACT for SCD) for Black adolescents and young adults (ages 14-21) who have sickle cell disease. The goal is to see if this 6-session group therapy can help with stress related to race and chronic illness, and if it's something people find helpful and easy to participate in. Researchers will measure changes in race-related stress after 12 weeks, and self-efficacy (your belief in your ability to succeed) and internalized stigma (negative feelings about your condition) after 6 months. The study is currently unclear on its recruitment status and plans to enroll 66 participants.
- Study design
- This is an interventional study, meaning participants will receive a specific therapy. It involves a small group of 30 participants in a non-randomized way, with 8-10 people in each group.
- What's involved
- Participants will enroll in a 6-session ACT group. The study will measure outcomes at 12 weeks and 6 months.
- Compensation
- Not stated in the trial record.
- Follow-up
- Participants will be followed for 6 months after starting the intervention to measure certain outcomes.
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Acceptance and Commitment Therapy for Adolescents and Young Adults With Sickle Cell Disease
At a glance
Conditions
Where it's being run
1 sites across 1 statesStudy leadership
- Xzania Lee, PhD · PRINCIPAL_INVESTIGATOR · Children's Hospital Los Angeles
Who to contact
Opens a ready-to-send draft in your own email app — review before sending.
What this trial measures
- Total Score on Index of Race-Related Stress (IRRS)-Brief Version12 weeks
Higher scores on this measure indicate greater race-related stress. The minimum score on this measure is 0 and the maximum is 88.
- Sickle Cell Self-Efficacy Scale6 mos
a 9-item, self-administered questionnaire that measures an adult's confidence in managing sickle cell disease (SCD) day-to-day, including pain, emotions, and daily functioning.
- SCD Health-Related Internalized Stigma Scale6 mos
an 11-item tool assessing internalized stigma and other factors in sickle cell disease (SCD) patients
- Transition Readiness Assessment Questionnaire (TRAQ),6 mos
measure acquisition of transition readiness skills across the five stages of change