Observational Study for Central Nervous System Vasculitis
This study is looking into Primary Central Nervous System Vasculitis (CNSV), a rare condition where blood vessels in the brain and spinal cord become inflamed. This can lead to serious problems like strokes, memory issues, and vision loss. Researchers want to better understand how CNSV develops, how it's treated, and what happens to patients over time. They plan to gather information from about 40 adults aged 18 and older who have been diagnosed with CNSV. The main goal is to track the disease's progress and history for up to 36 months to learn more about its causes and effects.
- Study design
- This is an observational study, meaning researchers will collect information without giving any specific treatments. It aims to enroll about 40 participants.
- What's involved
- Not specified in the trial record.
- Compensation
- Not stated in the trial record.
- Follow-up
- Participants will be followed from the start of the study through month 36.
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Longitudinal Study for Central Nervous System Vasculitis
At a glance
Conditions
Where it's being run
6 sites across 5 statesStudy leadership
- Rula Hajj-Ali, MD · PRINCIPAL_INVESTIGATOR · The Cleveland Clinic
- Leonard Calabrese, MD · PRINCIPAL_INVESTIGATOR · The Cleveland Clinic
- Peter Merkel, MD · PRINCIPAL_INVESTIGATOR · University of Pennsylvania
Who to contact
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What this trial measures
- Evaluate the pathogenesis of central nervous system vasculitis using disease history.Study completion; from baseline through month 36.
To study the manner of development of disease in patients affected with central nervous system vasculitis.