Dietary Tracking in Amyloidosis

This study is looking into whether a smartphone app called MyFitnessPal can be used by people with amyloidosis (a rare disease where abnormal proteins build up in organs) to track their diet and supplements. The goal is to understand more about malnutrition and weight loss in amyloidosis patients. You would use the MyFitnessPal app on your own smartphone for about 8 weeks to log what you eat and any herbal or alternative supplements you take. Researchers will also ask you to fill out questionnaires at the beginning, after two weeks, and at the end of the study. This study is open to adults aged 18 or older who have any type of amyloidosis, can read and write English, and are willing to use the MyFitnessPal app. The study is currently unclear on its recruitment status and plans to enroll 40 participants.

Study design
This is an interventional study, meaning participants will receive a specific intervention (using the MyFitnessPal app). It plans to enroll 40 participants.
What's involved
You would download the MyFitnessPal app, watch an online tutorial, and then track your daily diet and supplements for 8 weeks (weeks 2-9). You would also complete questionnaires at the start, after week 2, and at week 10.
Compensation
Not stated in the trial record.
Follow-up
The primary endpoint, adherence rate, is measured at 56 days (8 weeks).

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NCT05738005

Dietary Reporting In The Amyloidoses

Recruiting
NAAges 18+InterventionalHealth services
Barbara Ann Karmanos Cancer Institute
~40 participants
Updated 2026-06-26 on ClinicalTrials.gov
What's tested:Tracking Dietary/Supplement Intake on MyFitnessPal smartphone application (app)

At a glance

Recruiting sites
1 of 1 listed site is recruiting right now
RecruitingSuspended, closed, or not yet open
What they're measuring
Adherence Rate
Measured over 56 days
Amyloidosis
1 sites across 1 states
Michigan1
  • Jeffrey Zonder, MD · PRINCIPAL_INVESTIGATOR · Barbara Ann Karmanos Cancer Institute

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Eligibility criteria

Inclusion

18 years of age or older
Diagnosed with any type of amyloidosis
Speak, read and write in English
Willing to use the MyFitnessPal app on their own smartphone

Exclusion

a planned autologous stem cell transplant or a solid organ transplant in the 12 weeks after enrollment
cognitive or perceptual disturbances
  • Adherence Rate56 days

    The adherence is defined by the status (yes vs. no) of data recording per day; The adherence rate will be calculated by the ratio of the number of days of adherence to the total number of days of trial (i.e., 56 days); The status of data recording per day will be considered 'yes' if the participant completes a daily survey.