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NCT05750667

Penn Family Screening for Familial Hypercholesterolemia

Enrolling by Invitation
NAAges 18+InterventionalHealth services
Northwestern University
~800 participants
Updated 2026-02-09 on ClinicalTrials.gov
What's tested:Cascade screening

At a glance

Recruiting sites
0 of 1 listed site is recruiting right now
RecruitingSuspended, closed, or not yet open
What they're measuring
Reach
Measured over Collected from proband randomization date through six months post-randomization

Conditions

Familial Hypercholesterolemia

Explore related trials

Hyperlipoproteinemia, Type IIa

NCT05750667

Where you'd take part

This study runs at 1 site. They're the same protocol — you choose where, and that choice sets who your contact draft is addressed to.

  • University of Pennsylvania, Perelman School of Medicine

    Philadelphia, Pennsylvaniano site contact published

Sites open and close at different times, so the status above is per site — it can differ from the study's overall status.

Who to contact

This trial hasn't published a contact. View it on ClinicalTrials.gov

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Eligibility criteria

Inclusion

Adults aged 18 years and older with clinically diagnosed FH who are treated within the Penn Medicine system
Have contact information for at least one living, first-degree biological relative
Have a cell phone with texting capabilities and/or access to email

Exclusion

People under age 18
Do not have contact information for at least one living, first-degree biological relative
Do not have a cell phone with texting capabilities nor access to email

What this trial measures

  • ReachCollected from proband randomization date through six months post-randomization

    Reach is defined as the proportion of probands who have at least one family member who completes screening (via a lipid panel or an FH genetic test) within 6 months of proband randomization. To mimic real world settings, we will allow family members to select how they would like to complete their screening from a range of mechanisms: sharing results from a recent lipid panel, requesting a lipid panel from their primary care provider, or having the study clinician order a lipid panel via LabCorp, a nationwide lab testing company.