NCT05750667
Penn Family Screening for Familial Hypercholesterolemia
Enrolling by Invitation
NAAges 18+InterventionalHealth servicesNorthwestern UniversityInvestigator-initiated
~800 participants
Updated 2026-02-09 on ClinicalTrials.gov
What's tested:Cascade screening
At a glance
Recruiting sites
0 of 1 listed site is recruiting right now
RecruitingSuspended, closed, or not yet open
What they're measuring
Reach
Measured over Collected from proband randomization date through six months post-randomization
Conditions
Where it's being run
1 sites across 1 statesPennsylvania1
Who to contact
This trial hasn't published a contact. View it on ClinicalTrials.gov
Do you actually qualify for this trial?
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Eligibility criteria
Inclusion
Adults aged 18 years and older with clinically diagnosed FH who are treated within the Penn Medicine system
Have contact information for at least one living, first-degree biological relative
Have a cell phone with texting capabilities and/or access to email
Exclusion
People under age 18
Do not have contact information for at least one living, first-degree biological relative
Do not have a cell phone with texting capabilities nor access to email
What this trial measures
- ReachCollected from proband randomization date through six months post-randomization
Reach is defined as the proportion of probands who have at least one family member who completes screening (via a lipid panel or an FH genetic test) within 6 months of proband randomization. To mimic real world settings, we will allow family members to select how they would like to complete their screening from a range of mechanisms: sharing results from a recent lipid panel, requesting a lipid panel from their primary care provider, or having the study clinician order a lipid panel via LabCorp, a nationwide lab testing company.