Telehealth Advance Care Planning for Myeloid Malignancies

This study is testing a Telehealth Serious Illness Care Program to help older patients with myeloid malignancies (like acute myeloid leukemia or myelodysplastic syndromes) and their families talk about important healthcare decisions. This program uses tools and training for doctors, and educational materials for patients. It's being compared to standard educational materials from the NCI. The study aims to see if this program improves how patients and doctors communicate, reduces patient anxiety, and helps complete advance directives (documents that state your healthcare wishes). You may be able to join if you are 60 or older, have a myeloid malignancy, are managed as an outpatient, and speak English. The study plans to enroll 207 participants, but its current status is unclear.

Study design
This is an interventional study comparing two approaches: a Telehealth Serious Illness Care Program and an education control. It plans to enroll 207 participants.
What's involved
Not specified in the trial record.
Compensation
Not stated in the trial record.
Follow-up
Healthcare communication will be measured at Month 2.

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NCT05875805

A Telehealth Advance Care Planning Intervention

Recruiting
NAAges 60+InterventionalSupportive care
University of Rochester
~207 participants
Updated 2026-04-03 on ClinicalTrials.gov
What's tested:Telehealth Serious Illness Care ProgramEducation Control

At a glance

Recruiting sites
1 of 1 listed site is recruiting right now
RecruitingSuspended, closed, or not yet open
What they're measuring
Healthcare Communication: Health Care Climate Questionnaire
Measured over Month 2
Myeloid Malignancy
Acute Myeloid Leukemia
Myelodysplastic Syndromes
Myelodysplastic/Myeloproliferative Neoplasm
Myelofibrosis
1 sites across 1 states
New York1
  • Kah Poh Loh · PRINCIPAL_INVESTIGATOR · University of Rochester

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Do you actually qualify for this trial?

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Eligibility criteria

Inclusion

Age ≥60 years
A diagnosis of AML, MDS, and similar myeloid malignancies (including but not limited to MDS/MPN overlap syndrome, myelofibrosis)
Being managed in the outpatient settings
Able to provide informed consent
English-speaking
Age ≥18 years
Selected by patient when asked if there is a "family member, partner, friend, or caregiver with whom you discuss or who can be helpful in health-related matters"
Able to provide informed consent
English-speaking
  • Healthcare Communication: Health Care Climate QuestionnaireMonth 2

    5-item questionnaire assessing patients' and caregivers' satisfaction with patient-clinician communication, range 0-20; higher score is better