This study is creating a registry and a collection of samples for future research on synovial sarcoma, a type of cancer. The goal is to improve outcomes for patients by understanding the disease better through genetic testing. You can join if you have been diagnosed with synovial sarcoma and are willing to share your medical records and leftover tumor tissue. You may also be asked to provide a blood or saliva sample and complete questionnaires about your health history. Researchers will follow up with you for updates on your treatment and outcomes for up to 10 years. This study aims to gather information from 1000 participants, but its current recruitment status is unclear.

Study design

This is an observational study collecting data and samples from 1000 participants with synovial sarcoma.

What's involved

You would allow access to medical records and leftover tumor tissue, and may be asked to give a blood or saliva sample. You would also complete questionnaires and may be contacted every 6 to 12 months for updates for up to 10 years.

Compensation

Not stated in the trial record.

Follow-up

You may be contacted for updates on treatment and outcomes for up to 10 years after initial diagnosis and/or relapse.

AI-generated from the public study record. Only the study team can confirm whether you're eligible — confirm details with them before making decisions.