Writing Intervention for Adolescents and Young Adults with Cancer
This study is exploring whether a writing exercise can be helpful for young people (ages 15-25) who are currently receiving cancer treatment at St. Jude Children's Research Hospital. You would be asked to write about your experiences with cancer, guided by prompts, and supported by an expert writer. After writing, you would have an interview to share your thoughts on the experience. The researchers want to see if this type of writing is something young people with cancer want to do and find valuable. The study aims to enroll 26 participants.
- Study design
- This is an interventional study with a planned enrollment of 26 participants. It is designed to assess the feasibility and acceptability of a writing-based intervention.
- What's involved
- You would participate in a writing exercise over about two months, with optional meetings with an expert writer. After writing, you would have an interview, and potentially a second interview 6 to 12 months later.
- Compensation
- Not stated in the trial record.
- Follow-up
- You may participate in a second informal interview 6 to 12 months after completing the first interview.
AI-generated from the public study record. Only the study team can confirm whether you're eligible — confirm details with them before making decisions.
Writing Intervention With Adolescents and Young Adults With Cancer
At a glance
Conditions
Where it's being run
1 sites across 1 statesStudy leadership
- Erica Kaye, MD · PRINCIPAL_INVESTIGATOR · St. Jude Children's Research Hospital
Who to contact
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Do you actually qualify for this trial?
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Inclusion
What this trial measures
- Number of touchpoints that participants have with the narrative medicine expert/guideDuring the narrative exercise, up to 2 months after enrollment
To determine intervention feasibility, the number of touchpoints that participants have with the narrative medicine expert/guide will be tracked
- Number of participants who complete the writing exerciseDuring the narrative exercise, up to 2 months after enrollment
To determine intervention feasibility, the number of participants who complete the writing exercise will be tracked
- Intervention acceptabilityPost-intervention interview will occur after the narrative exercise is completed at around 2 months after enrollment, +/- 1 month
Comparison of acceptability between participants who did/did not participate in the optional check-ins. Analysis of de-identified semi-structured interviews will be done. Interviews will be recorded, transcribed, de-identified, and analyzed using content analysis, an inductive approach that includes memo-writing, codebook development, coding, reconciliation, and synthesis to identify emerging patterns and themes.