Understanding Cluster Headache Clinical Trial Experiences

This study is looking at why some people with cluster headache join clinical trials and others don't, and what helps people stay in a trial until it's finished. It's an observational study, meaning you won't receive a new treatment, but will share your experiences. The goal is to understand what makes it easier or harder for people, especially those from groups not often included in research, to participate in cluster headache studies. You can join if you're 18 or older, have a cluster headache diagnosis, and have internet access to provide updates. This research aims to improve future clinical trials for everyone with cluster headache.

Study design
This is an observational study with a planned enrollment of 500 participants. It aims to understand patient experiences in cluster headache clinical research.
What's involved
You would need to provide regular digital updates through a home internet connection. The study will measure your enrollment rate at 3 months and your completion rate at 12 months.
Compensation
Not stated in the trial record.
Follow-up
The study will track how many patients remain in clinical research until completion, measured at 12 months.

AI-generated from the public study record. Only the study team can confirm whether you're eligible — confirm details with them before making decisions.

NCT05978258

A Close Examination of Patient Experiences in Cluster Headache Clinical Research

Not Yet Recruiting
Not specifiedAges 18+Observational
Power Life Sciences Inc.
~500 participants
Updated 2023-08-07 on ClinicalTrials.gov

At a glance

Recruiting sites
0 of 1 listed site is recruiting right now
RecruitingSuspended, closed, or not yet open
What they're measuring
Rate of patients who decide to enroll in a cluster headache clinical study.
Measured over 3 months
+1 more outcome measured
Cluster Headache
1 sites across 1 states
California1
  • Michael B Gill · STUDY_DIRECTOR · Power Life Sciences Inc.

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Do you actually qualify for this trial?

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Eligibility criteria

Inclusion

Patient has been diagnosed with cluster headache
Patient has access to a home internet connection in order to provide regular updates through the course of the study
Participant must be 18 years of age or older

Exclusion

Patient has an ECOG score of 4 or higher
Patient is not able to provide consistent digital updates as per study requirements
Patient does not complete or agree to terms outlined in the Informed Consent Form
  • Rate of patients who decide to enroll in a cluster headache clinical study.3 months
  • Number of cluster headache patients who remain in clinical research until completion.12 months