This study, called the Vitaccess Real MG Registry, is collecting information over 10 years about myasthenia gravis (MG), a long-term condition that causes muscle weakness. It's an observational study, meaning you won't receive a new treatment, but researchers will gather data on your MG, its treatments, and how it affects your symptoms, daily life, and quality of life. The goal is to understand MG better by combining information you provide with details from your medical records. About 600 adults with a confirmed MG diagnosis will be included. You can join if you are at least 18 years old, live in a participating country (currently US and UK), have access to a smart device, and are willing to give informed consent. You cannot be in another clinical trial at the same time.

Study design

This is an observational study designed to collect data on myasthenia gravis over 10 years. Approximately 600 participants will be recruited.

What's involved

You will provide patient-reported data through a digital platform at baseline and regularly thereafter for up to 10 years. Your clinical team will also update your electronic medical records (EMR) every six months, which will be used for the study.

Compensation

Not stated in the trial record.

Follow-up

Participants will be followed for up to 10 years from the study's launch.

AI-generated from the public study record. Only the study team can confirm whether you're eligible — confirm details with them before making decisions.