Pregnancy Surveillance Program for Epidiolex/Epidyolex Exposure

This study is looking at the health of pregnant individuals and their babies after exposure to Epidiolex/Epidyolex. Researchers want to understand pregnancy-related health outcomes in people who took Epidiolex/Epidyolex (an oral solution) during pregnancy, or in the 13 days before their last menstrual period. They will follow the babies for up to 12 months after birth. To join, you must have been exposed to Epidiolex/Epidyolex during this time and give your consent. The main goal is to measure the rate of maternal complications (MCM). The study is currently observational, meaning researchers are watching what happens rather than giving a specific treatment, and the status of recruitment is unclear.

Study design
This is an observational study, meaning researchers will collect information without giving a specific treatment. It plans to enroll 50 participants.
What's involved
Not specified in the trial record.
Compensation
Not stated in the trial record.
Follow-up
Participants and their infants will be followed for up to 12 months after birth.

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NCT06113237

Pregnancy Surveillance Program of Patients Exposed to Epidiolex/Epidyolex During Pregnancy

Recruiting
Not specifiedAll AgesObservational
Jazz Pharmaceuticals
~50 participants
Updated 2026-08-20 on ClinicalTrials.gov
What's tested:Epidiolex

At a glance

Recruiting sites
2 of 2 listed sites are recruiting right now
RecruitingSuspended, closed, or not yet open
What they're measuring
Rate of MCM
Measured over Up to 12 months post birth
Maternal Complications
Pregnancy Complication
Birth Outcomes, Adverse
Pregnancy
2 sites across 2 states
West Virginia1
Germany1
Clinical Trial Disclosure & Transparency
Email the study team

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  • Rate of MCMUp to 12 months post birth

    Rate of Major congenital malformation (MCM) identified in the developing neonate and infant through 12 months of age