Expressive Writing for Grief After Spinal Cord Injury
This study is exploring if expressive writing can help adults with spinal cord injury (SCI) cope with grief. The study will test a 10-week online program called "expressive writing" where a coach guides participants through writing exercises. The goal is to see if this program can reduce feelings of grief and improve overall well-being. You might be able to join if you are an adult (18 years or older) with a spinal cord injury, have internet access, and can communicate in English. The study aims to enroll 60 participants, but its current status is unclear.
- Study design
- This is an interventional study that plans to enroll 60 participants. It uses a randomized controlled trial design.
- What's involved
- You would participate in a 10-week online coach-guided expressive writing program. You would also complete questionnaires at the beginning, after 11 weeks, and at a 3-month follow-up.
- Compensation
- Not stated in the trial record.
- Follow-up
- Participants will be followed for 3 months after the 11-week program to measure grief, impact of events, and emotional distress.
AI-generated from the public study record. Only the study team can confirm whether you're eligible — confirm details with them before making decisions.
The Impact of Expressive Emotional Writing on Facilitating Grief Resolution in Adults With Spinal Cord Injury
At a glance
Conditions
Where it's being run
1 sites across 1 statesStudy leadership
- Hon Yuen, PhD · PRINCIPAL_INVESTIGATOR · University of Alabama at Birmingham
Who to contact
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What this trial measures
- Grief and Loss Scalebaseline, 11 weeks, 3-month follow-up
a 9-item measure of an individual's emotional reactions or grief such as anger, guilt, anxiety, sadness, and despair in the past 7 days, using a 5-point scale: 1=never to 5=always. The scores range from 9 to 45. Higher scores reflect higher degree of grief and loss.
- Impact of Events Scalebaseline, 11 weeks, 3-month follow-up
a 6-item measure of an individual's distress related to different difficulties in the past 7 days, using a 5-point scale: 0=not at all to 4=extremely. The scores range from 0 to 24. Higher scores reflect greater distress.
- Emotional Distress - Depressionbaseline, 11 weeks, 3-month follow-up
It is a part of the Patient-Reported Outcomes Measurement Information System (PROMIS). It is an 8-item measure of an individual's emotional distress (depression) in the past 7 days, using a 5-point scale: 1=never to 5=always. The scores range from 8 to 40. Higher scores reflect higher degree of emotional distress (depression)
- Perceived Stress Scale (PSS)baseline, 11 weeks, 3-month follow-up
is a 10-item measure of frequency of an individual experiencing stress in the past month, using a 5-point scale: 1=never to 5=very often. Four positively stated items require reversed coding. The scores range from 10 to 50. Higher scores reflect higher frequency of experiencing stress.
- Sleep Disturbancebaseline, 11 weeks, 3-month follow-up
It is a part of the Patient-Reported Outcomes Measurement Information System (PROMIS). It is a 4-item measure of an individual's sleep problem or quality in the past 7 days, using a 5-point scale: 1=not at all to 5=very much or 1=very good to 5=very poor. Two positively stated item require reversed coding. The scores range from 4 to 20. Higher scores reflect greater sleep problem.
- Sleep Impactbaseline, 11 weeks, 3-month follow-up
It is a part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ). It is a 5-item measure of an individual's trouble falling asleep in the past 7 days, using a 5-point scale: 5=never to 5=always. One positively stated item require reversed coding. The scores range from 5 to 25. Higher scores reflect less trouble falling asleep.
- Meaning and Purposebaseline, 11 weeks, 3-month follow-up
It is part of the NIH Toolbox Item Bank. It is a 7-item measure of an individual's meaning and purpose in life, using a 5-point scale:1=strongly disagree to 5=strongly agree. The scores range from 7 to 35. Higher scores reflect greater meaning and purpose in life.
- Self-Efficacy for Managing Chronic Conditions - Managing Emotionsbaseline, 11 weeks, 3-month follow-up
It is a part of the Patient-Reported Outcomes Measurement Information System (PROMIS). It is a 4-item measure of an individual's self-efficacy for managing chronic conditions, using a 5-point scale: 1=I am not at all confident to 5=I am very confident. The scores range from 4 to 20. Higher scores reflect greater confident in managing chronic conditions.
- Ability to Participate in Social Roles and Activitiesbaseline, 11 weeks, 3-month follow-up
It is a 4-item measure of an individual's trouble participating in social roles and activities, using a 5-point scale:1=always to 5=never. The scores range from 4 to 20. Higher scores reflect less trouble participating in social roles and activities.
- Satisfaction with Social Roles and Activitiesbaseline, 11 weeks, 3-month follow-up
It is a 4-item measure of an individual's satisfaction with social roles and activities, using a 5-point scale:1=not at all to 5=very much. The scores range from 4 to 20. Higher scores reflect greater satisfaction with social roles and activities.
- Connor-Davidson Resilience Scalebaseline, 11 weeks, 3-month follow-up
It consists of 10 statements that respondents rated on a 5-point scale from 0 - Not true at all. 1 - Rarely true.2 - Sometimes true.3 - Often true.4 - True nearly all the time. Answers were scored from 0 to 4 to create a total score that ranged from 0 to 100, with higher numbers denoting greater resilience.
- Cortisol levelbaseline, 11 weeks, 3-month follow-up
Hair cortisol level