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NYSCF Scientific Discovery Biobank for ALS and Alzheimer's Disease Research

The New York Stem Cell Foundation (NYSCF) Research Institute is collecting biological samples like skin, blood, and saliva to create stem cells and perform genetic testing. This research aims to understand diseases like ALS (Amyotrophic Lateral Sclerosis) and Alzheimer's disease better, hoping to find future treatments or cures. You can join if you are 30 days old or older and have a diagnosis or medical history of a condition of interest, or are a healthy control. The main goal is to build a biobank (a collection of biological samples) for future research. This study is currently recruiting participants.

Study design
This is an observational study planning to enroll 10,000 participants. It is not a clinical trial.
What's involved
Participation involves completing health questionnaires, providing a skin and/or blood sample, and a saliva sample. There may also be future follow-up for more information or other research studies.
Compensation
Not stated in the trial record.
Follow-up
Not specified.

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NCT06203106

NYSCF Scientific Discovery Biobank

Recruiting
Not specifiedAges 30+Observational
New York Stem Cell Foundation Research Institute
~10,000 participants
Updated 2025-03-03 on ClinicalTrials.gov
What's tested:Biological Sample Collection

At a glance

Recruiting sites
1 of 1 listed site is recruiting right now
RecruitingSuspended, closed, or not yet open
What they're measuring
Biobank
Measured over Baseline

Conditions

ALS
Amyotrophic Lateral Sclerosis
Alzheimer Disease
Alzheimer Disease, Early Onset
Alzheimer Disease, Late Onset
Batten Disease
Corticobasal Degeneration
Dementia
Frontotemporal Dementia
Huntington Disease
Lewy Body Disease
Multiple Sclerosis
Multiple System Atrophy
Parkinson Disease
Parkinson's Disease and Parkinsonism
Progressive Supranuclear Palsy
INAD
Diabetes
Diabetes Mellitus
Diabetes Mellitus, Type 2
Diabetes Mellitus, Type 1
Macular Degeneration
Ovarian Cancer
Cervical Cancer
Uterine Cancer
Vaginal Cancer
Vulvar Cancer
PTSD
Post Traumatic Stress Disorder

Explore related trials

Alzheimer's DiseaseAmyotrophic Lateral SclerosisCervical CarcinomaCorticobasal DegenerationDementiaFrontotemporal DementiaHuntington's DiseaseInfantile Neuroaxonal DystrophyLewy Body DementiaMacular DegenerationMalignant Ovarian NeoplasmMalignant Uterine NeoplasmMultiple SclerosisMultiple System AtrophyNeuronal Ceroid Lipofuscinosis Type 3Parkinson DiseaseParkinsonismPost-Traumatic Stress DisorderProgressive Supranuclear PalsyType 1 Diabetes MellitusType 2 Diabetes MellitusVaginal CarcinomaVulvar Carcinoma

Where it's being run

1 sites across 1 states
New York1

Study leadership

  • Laura Andres-Martin, PhD · PRINCIPAL_INVESTIGATOR · New York Stem Cell Foundation Research Institute

Who to contact

Clinical Research Office
[email protected]
212-927-1801
Email the study team

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Eligibility criteria

Inclusion

Age 30 days or older.
Diagnosis and/or medical history of a condition, disease, genetic background, or trait of interest or healthy control.
Adults with decisional capacity must provide written informed consent unless physical limitations preclude signing.
Adults without decisional capacity to consent must a have diagnosis of Amyotrophic Lateral Sclerosis (ALS), Alzheimer's Disease and Related Dementias (AD/ADRD); Batten Disease, Corticobasal Degeneration (CBD), Dementia, Frontotemporal Dementia (FTD), Huntington Disease, Lewy Body Disease, Multiple Sclerosis, Multiple System Atrophy, Parkinson's Disease (PD), Parkinsonism, and/or Progressive Supranuclear Palsy, and must provide assent; a legally authorized representative (LAR) must also provide written informed consent.
Minors undergoing skin collection for research purposes must have a condition, disease, genetic background, or trait of interest and parental/guardian consent.
Minors undergoing blood, and/or saliva collection for research purposes may have a condition, disease, genetic background, or trait of interest or serve as a healthy control and must have an available parent/guardian to provide consent.
Minors transferring biological samples and associated data from a procedure outside of the research may have a condition, disease, genetic background, or trait of interest or serve as a healthy control and must have an available parent/guardian to provide consent.

Exclusion

Wards of the state.
For prospective skin samples: history of keloid formation, coagulation disorder, or allergy to the anesthetic.
For prospective blood samples: history of coagulation disorder.
For all prospective sample collections: 1) Subjects who refuse to adhere to NYSCF's and/or a collection site's safety protocol(s) will be excluded; 2) Subjects with an AIDS diagnosis and CD4 count of less than 200 cells per microliter (mcL) of blood will be excluded due to increased risk of infection.

What this trial measures

  • BiobankBaseline

    Establishment of a diverse repository of biological samples, stem cell lines, derivatives, and associated information to support investigations into the biology, etiology, manifestations, progression, risk factors, genetic underpinnings, and treatment of diseases, conditions, and traits.