Understanding Experiences of Semantic Dementia Patients in Clinical Studies

This study is observing the experiences of people with semantic dementia (a type of dementia affecting language and meaning) who are already participating in a separate clinical study involving a specific medication. Researchers want to understand why some participants complete these studies and why others withdraw. The goal is to improve future clinical studies for all individuals with semantic dementia, especially those from under-represented groups. You could be eligible if you have semantic dementia, are 18 or older, and are willing to follow the study's plan. The study will look at how many people enroll in a separate clinical research study over 3 months, and how many of those participants stay in that study until it's finished, measured at 12 months.

Study design
This is an observational study, meaning researchers will watch and collect information without providing any specific treatment. It plans to include about 500 participants.
What's involved
The study intends to follow individuals' rates of trial completion and withdrawal within a separate clinical study. Specific visits or procedures for this observational study are not detailed.
Compensation
Not stated in the trial record.
Follow-up
The study will track participants' completion of a separate clinical study for up to 12 months.

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NCT06218732

Revealing Engagement Dynamics Among Semantic Dementia Patients

Not Yet Recruiting
Not specifiedAges 18+Observational
Power Life Sciences Inc.
~500 participants
Updated 2024-01-23 on ClinicalTrials.gov

At a glance

Recruiting sites
0 of 1 listed site is recruiting right now
RecruitingSuspended, closed, or not yet open
What they're measuring
Rate of patients who decide to enroll in a semantic dementia clinical research.
Measured over 3 months
+1 more outcome measured
Semantic Dementia
1 sites across 1 states
California1
  • Michael B Gill · STUDY_DIRECTOR · Power Life Sciences Inc.

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Eligibility criteria

Inclusion

Patients diagnosed with semantic dementia
Aged ≥ 18 years old and ability to provide written informed consent obtained prior to participation in the study and any related procedures being performed
Subjects willing and able to comply with the protocol for the duration of the study including undergoing treatment and scheduled visits and examination.

Exclusion

Refusal of consent
Women of childbearing potential without a negative pregnancy test; or women who are lactating.
Any serious and/or unstable pre-existing medical disorders
  • Rate of patients who decide to enroll in a semantic dementia clinical research.3 months
  • Number of semantic dementia study participants who remain in clinical study until completion.12 months