Observational Study for Retinal Degeneration Vision Assessments
This study is looking at how well different vision tests work for people with certain eye conditions like Retinitis Pigmentosa, Choroideremia, Stargardt Macular Dystrophy, Stargardt Disease, and Geographic Atrophy from Age-related Macular Degeneration. Researchers want to see how these tests relate to daily activities and how accurately they measure changes in vision over time. You could be eligible if you have one of these conditions and your best-corrected vision is between 20/70 and Hand Motion (HM) in at least one eye. This study does not involve any new treatments or medications; it focuses on improving how we measure vision in people with low vision. The goal is to make sure vision tests are as helpful and accurate as possible.
- Study design
- This is an observational study involving up to 120 participants. It is designed to evaluate vision assessments in people with various retinal conditions.
- What's involved
- You would attend an initial visit for a series of vision tests, followed by another visit up to two weeks later, and then periodically for up to one year.
- Compensation
- Not stated in the trial record.
- Follow-up
- Participants will be followed periodically for up to one year after their initial visit.
AI-generated from the public study record. Only the study team can confirm whether you're eligible — confirm details with them before making decisions.
Observational Study to Assess Endpoint Operational Feasibility & Measurement Properties in Patients with Retinal Degeneration
At a glance
Conditions
Where it's being run
1 sites across 1 statesWho to contact
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Do you actually qualify for this trial?
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Inclusion
Exclusion
What this trial measures
- Operational feasibility of testing moderate to profound vision impaired patients with various retinal dystrophies on a battery of visual assessments3 months
Determining how many patients in the visual range 20/70 - HM (depending upon indication) can perform specific tests of visual function with a measurable score.