The Preeclampsia Registry

The Preeclampsia Registry is collecting health information from women who have had preeclampsia or related high blood pressure disorders during pregnancy (like eclampsia or HELLP syndrome), their family members, and women who have never had these conditions. This information will be used for medical research to better understand why preeclampsia happens, how to predict it, and to help develop new treatments. You would share your medical history and other details through a web-based survey, and your medical records would be reviewed. The goal is to gather enough information to improve care for mothers and babies affected by preeclampsia. The study aims to enroll 20,000 participants and is currently unclear on its status.

Study design
This is an observational study aiming to enroll 20,000 participants. It is not testing a specific intervention.
What's involved
You would complete a web-based survey and allow for the collection and review of your medical records. This information will be assessed yearly, for up to 20 years.
Compensation
Not stated in the trial record.
Follow-up
Your self-reported diagnosis of preeclampsia and hypertensive disorders of pregnancy, confirmed by medical records, will be assessed yearly, up to 20 years.

AI-generated from the public study record. Only the study team can confirm whether you're eligible — confirm details with them before making decisions.

NCT06377878

The Preeclampsia Registry

Recruiting
Not specifiedAges 13+Observational
Preeclampsia Foundation
~20,000 participants
Updated 2024-04-22 on ClinicalTrials.gov

At a glance

Recruiting sites
1 of 1 listed site is recruiting right now
RecruitingSuspended, closed, or not yet open
What they're measuring
Self Reported Diagnosis of Preeclampsia and Hypertensive Disorders of Pregnancy Confirmed by Medical Records
Measured over Will be assessed yearly, up to 20 years
Preeclampsia
Eclampsia
HELLP Syndrome
Toxemia
Hypertensive Disorder of Pregnancy
1 sites across 1 states
Florida1
  • Eleni Z Tsigas, BA · PRINCIPAL_INVESTIGATOR · Preeclampsia Foundation

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Do you actually qualify for this trial?

Add a private profile and we'll compare every criterion below against your situation — and tell you which ones are met, uncertain, or excluding.

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Eligibility criteria

Inclusion

Women who were medically diagnosed with preeclampsia or a related hypertensive disorder of pregnancy (HDP) such as eclampsia or HELLP syndrome.
Female or Male relatives of affected women
Women who have never had preeclampsia or hypertensive disorders of pregnancy, but who would like to serve as "controls" in research studies of preeclampsia.
An authorized representative may complete the questionnaire and provide consent for a woman who had preeclampsia, but has died or is disabled as a result.

Exclusion

Those unable to provide consent
Prisoners
Individuals unable to speak English
  • Self Reported Diagnosis of Preeclampsia and Hypertensive Disorders of Pregnancy Confirmed by Medical RecordsWill be assessed yearly, up to 20 years