HEAL-Tx: Health Advocate for Adolescent Liver Transplant Recipients
This study is testing a program called "Health Advocate" (HEAL-Tx) to see if having a dedicated advocate can help young people (ages 18-25) who have had a liver transplant transition smoothly to adult care. The Health Advocate will help with things like finding food or housing, improving communication with doctors, and coordinating care. We want to see if this program is practical and well-received by patients and their families. To join, you must have received a liver transplant over a year ago, be between 18 and 25 years old, and have a social need (like food insecurity) or a certain risk score. The study plans to enroll 20 participants, but the current recruitment status is unclear.
- Study design
- This is a pilot study, meaning it's a small-scale test of the Health Advocate intervention. It is open-label, so everyone involved will know they are receiving the intervention. There will be 20 participants.
- What's involved
- You will participate in the Health Advocate program. Your experience will be measured at the beginning of the study and again after 180 days.
- Compensation
- Not stated in the trial record.
- Follow-up
- Your patient experience will be measured at baseline and again after 180 days.
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HEalth Advocate for Liver Transplantation: Improving Transition of Care for Adolescent Liver Transplant Recipients
At a glance
Conditions
Where it's being run
2 sites across 2 statesStudy leadership
- Sharad Wadhwani, MD, MPH · PRINCIPAL_INVESTIGATOR · University of California, San Francisco
Who to contact
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Do you actually qualify for this trial?
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Exclusion
What this trial measures
- Changes in patient experienceBaseline and 180 days
The investigators will administer a survey of patient experience at study enrollment and at the end of the intervention to assess for changes in patient experience with the transplant team. These questions will focus on experiences receiving transplant care, experiences discussing social needs with the transplant team, and overall subjective assessment of the transplant recipient's overall health.