DeciPHer-ILD: Understanding Pulmonary Hypertension with Interstitial Lung Disease

This study is a registry, meaning it collects information from people with pulmonary hypertension (high blood pressure in the lungs) associated with interstitial lung disease (PH-ILD) and interstitial lung disease (ILD). It aims to better understand how these conditions progress and how treatments like Tyvaso/Tyvaso DPI affect patients in real-world settings. Researchers will gather information on patient characteristics, treatments, and health outcomes over time. You may be able to join if you are an adult aged 18 or older with a diagnosis of fibrotic ILD. The main goal is to describe the characteristics of patients at the beginning of the study. The study is currently unclear on its recruitment status.

Study design
This is an observational study that will enroll approximately 900 participants into four different groups based on their treatment with Tyvaso/Tyvaso DPI or risk of PH.
What's involved
You would complete assessments at 3 months, then at 6- and 12-month intervals for up to 5 years. These assessments may involve providing information that is not already part of your standard medical care.
Compensation
Not stated in the trial record.
Follow-up
Participants will be followed for up to 5 years after joining the study.

AI-generated from the public study record. Only the study team can confirm whether you're eligible — confirm details with them before making decisions.

NCT06388421

DeciPHer-ILD: A Real-world Patient Registry in Group 3 Pulmonary Hypertension Associated With Interstitial Lung Disease (PH-ILD)

Recruiting
Not specifiedAges 18+Observational
United Therapeutics
~900 participants
Updated 2026-08-26 on ClinicalTrials.gov
What's tested:Prospective study assessments

At a glance

Recruiting sites
71 of 71 listed sites are recruiting right now
RecruitingSuspended, closed, or not yet open
What they're measuring
Baseline characteristics as described by demographics, medical history, ILD history, PH history, family history (comorbidities), and diagnostic right heart catheterization values.
Measured over Baseline
Pulmonary Hypertension Due to Lung Diseases and Hypoxia
Pulmonary Hypertension
Interstitial Lung Disease
71 sites across 33 states
Florida6
North Carolina5
Pennsylvania5
New York4
Ohio4
Texas4
Virginia4
Illinois3
United Therapeutics Global Medical Information
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  • Baseline characteristics as described by demographics, medical history, ILD history, PH history, family history (comorbidities), and diagnostic right heart catheterization values.Baseline