Chronic Kidney Disease-Education (CKD-EDU) Study

This study is looking for older adults, aged 75 and above, with advanced chronic kidney disease (CKD) whose kidney function is less than 30% and who have not yet decided on dialysis. The goal is to find out which educational program, Program A or Program B, better helps patients make decisions about their kidney treatment. Program A offers information from the National Kidney Foundation and support from a kidney therapy educator. Program B provides a video and paper decision aid along with coaching from a decision support specialist. Researchers will compare how well participants feel prepared about their treatment choices, if their end-of-life care improves, and if they have fewer emergency room visits or hospital stays. The study is currently recruiting participants.

Study design
This study is an interventional study with 326 planned participants. Half of the participants will receive Program A, and the other half will receive Program B.
What's involved
Participants will have visits aimed at supporting their kidney therapy decision-making. Changes in decision-making will be measured at baseline, 4-6 weeks, and 12 weeks.
Compensation
Not stated in the trial record.
Follow-up
Participants will be followed for changes in their kidney therapy decision-making process for up to 12 weeks, and for hospital or emergency room visits for the first 6 months.

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NCT06410144

Chronic Kidney Disease-Education (CKD-EDU)

Recruiting
NAAges 75+InterventionalSupportive care
University of Rochester
~326 participants
Updated 2026-05-05 on ClinicalTrials.gov
What's tested:Program AProgram B

At a glance

Recruiting sites
5 of 5 listed sites are recruiting right now
RecruitingSuspended, closed, or not yet open
What they're measuring
Changes in Kidney Therapy Decision-Making Process using the Decisional Conflict Scale at 12 weeks
Measured over Baseline, 4-6 weeks, and 12 weeks
Chronic Kidney Diseases

NCT06410144

Where you'd take part

This study runs at 5 sites. They're the same protocol — you choose where, and that choice sets who your contact draft is addressed to.

  • Highland Hospital

    Rochester, New Yorkstudy coordinator listed

    Recruiting

  • Nephrology Clinic - St. James Medical Office Building

    Hornell, New Yorkstudy coordinator listed

    Recruiting

  • Nephrology Clinic - Thompson Professional Building

    Canandaigua, New Yorkstudy coordinator listed

    Recruiting

  • University of Rochester Medical Center

    Rochester, New Yorkstudy coordinator listed

    Recruiting

  • UR Medicine Nephrology - Strong West

    Brockport, New Yorkstudy coordinator listed

    Recruiting

Sites open and close at different times, so the status above is per site — it can differ from the study's overall status.

  • Fahad Saeed, MBBS, MSCI · PRINCIPAL_INVESTIGATOR · University of Rochester

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Eligibility criteria

Inclusion

Age ≥ 75 years old
Has advanced kidney disease with kidney function less than 30%
Speaks English
Has not yet made a dialysis decision

Exclusion

Has already decided on dialysis or active medical care without dialysis.
Has already been seen by a Palliative Care (PC) clinician for kidney-related issues or is enrolled in hospice
Currently on dialysis
Unable to provide informed consent or complete verbally administered surveys due to health, sensory, or cognitive impairment.
  • Changes in Kidney Therapy Decision-Making Process using the Decisional Conflict Scale at 12 weeksBaseline, 4-6 weeks, and 12 weeks

    Determine whether the intervention improves kidney therapy decision-making at 12 weeks by using the Decisional Conflict Scale. Score ranges from 0-100. Lower scores indicate better outcomes.