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Addressing Health Disparities in Normal Pressure Hydrocephalus in Maryland

This study aims to understand and reduce differences in care for Normal Pressure Hydrocephalus (NPH), a condition where excess fluid in the brain can cause problems with walking, memory, and bladder control. The study will provide education about NPH to patients and their primary care doctors, and community health workers will help patients overcome barriers to getting care. Researchers will look at how many people are referred to specialists and screened for NPH over 6, 12, and 24 months. You might be able to join if you are over 65, live in Maryland, and have completed an Annual Wellness Survey. The study is currently unclear about its recruitment status.

Study design
This interventional study plans to enroll 660 participants. It focuses on providing education to patients and healthcare providers.
What's involved
Not specified in the trial record.
Compensation
Not stated in the trial record.
Follow-up
The study will measure referrals at 6 months and screenings at 12 and 24 months.

AI-generated from the public study record. Only the study team can confirm whether you're eligible — confirm details with them before making decisions.

NCT06426004

Addressing Health Disparities in Normal Pressure Hydrocephalus (NPH) in Maryland

Not Yet Recruiting
NAAges 65+Interventional
Johns Hopkins Bloomberg School of Public Health
~660 participants
Updated 2026-05-07 on ClinicalTrials.gov
What's tested:patients will receive NPH educationprimary care physicians (PCPs) will receive professional NPH educationA community health worker will assist PCP

At a glance

Recruiting sites
0 of 2 listed sites are recruiting right now
RecruitingSuspended, closed, or not yet open
What they're measuring
number of referrals
Measured over 6 months
+2 more outcomes measured

Conditions

Normal Pressure Hydrocephalus
Hakim Syndrome

Explore related trials

Normal pressure hydrocephalus

Where it's being run

2 sites across 1 states
Maryland2

Study leadership

  • Hossein Zare, PhD · PRINCIPAL_INVESTIGATOR · Johns Hopkins Bloomberg School of Public Health

Who to contact

Hossein Zare, MS, PhD
[email protected]
4106147246
Email the study team

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Do you actually qualify for this trial?

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Eligibility criteria

Inclusion

People over 65 years old who have completed the Annual Wellness Survey (AWV) survey
have a clinical profile in the Hopkins Epic data sets
live in Maryland
certified Community Health Workers from Maryland
completed accredited training by the Maryland Department of Health
must have patients in Johns Hopkins University AWV

Exclusion

People under 65 years old will be excluded if they have not completed the AWV survey
do not live in Maryland

What this trial measures

  • number of referrals6 months

    number of referrals for suspicion of NPH to neurologists or neurosurgeons

  • number of screenings12 months

    number of screenings for shunt surgery

  • number of screenings24 months

    number of screenings for shunt surgery