The Co-Op @ HeartWorks for Congenital Heart Disease
This study, called The Co-Op @ HeartWorks, is creating a registry (a database) of people with Congenital Heart Disease (CHD), which are heart problems present at birth. It's not testing a specific treatment, but rather gathering information about the medical journeys of individuals with CHD. This information will help researchers design better future studies and treatments that truly meet the needs of the CHD community. You can join if you are an adult with CHD, a caregiver of a child with CHD, or a family member of someone who had CHD and has passed away. The goal is to build this registry over 25 years to guide future research. The current recruitment status is unclear.
- Study design
- This is an observational study aiming to enroll 500 participants. It is not a traditional clinical trial testing a specific intervention.
- What's involved
- Not specified in the trial record.
- Compensation
- Not stated in the trial record.
- Follow-up
- Participants will be part of a registry that aims to collect data for 25 years.
AI-generated from the public study record. Only the study team can confirm whether you're eligible — confirm details with them before making decisions.
The Co-Op @ HeartWorks
At a glance
Conditions
NCT06469918
Where you'd take part
This study runs at 1 site. They're the same protocol — you choose where, and that choice sets who your contact draft is addressed to.
HeartWorks, Inc.
Rochester, Minnesotastudy coordinator listed
Recruiting
Sites open and close at different times, so the status above is per site — it can differ from the study's overall status.
Who to contact
Opens a ready-to-send draft in your own email app — review before sending.
Want this trial checked against your situation?
Add a private profile and we'll compare every criterion below against your situation — and tell you which ones are met, uncertain, or excluding.
Inclusion
What this trial measures
- Registry of individuals with CHD to plan and recruit for future interventional trials in Congenital Heart Defects/Disease25 years