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Educational Support Group for Progressive Aphasia

This study is testing an educational support group program for people with progressive aphasia (a condition affecting language abilities) and their care partners. The program includes learning about the condition, communication strategies, and opportunities for discussion. You may be eligible if you speak Spanish and/or English, identify as Hispanic/Latinx (or your family member with progressive aphasia does), and have access to a device with video. The study aims to see if this program improves well-being, communication, and speech/language skills. We will measure your experiences through surveys at the beginning, immediately after the program, and three months later. The study plans to enroll 120 participants.

Study design
This is an interventional study with a planned enrollment of 120 participants. It offers two paths: one for individuals with progressive aphasia and one for caregivers, which includes a phase for practicing strategies.
What's involved
You will be involved in the study for a total of 9 months, which includes follow-up. This involves participating in educational/support group sessions and potentially a phase for practicing communication strategies.
Compensation
Not stated in the trial record.
Follow-up
You will have a follow-up assessment 3 months after the treatment ends.

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NCT06511752

Educational Support Group Program for Bilingual and Spanish-speaking Carepartners and People With Progressive Aphasia

Recruiting
EARLY_PHASE1Ages 18+InterventionalTreatment
University of Texas at Austin
~120 participants
Updated 2026-06-10 on ClinicalTrials.gov
What's tested:Psychosocial educational, support group and implementation of strategies

At a glance

Recruiting sites
1 of 1 listed site is recruiting right now
RecruitingSuspended, closed, or not yet open
What they're measuring
Treatment/Acceptability Survey
Measured over Baseline, Immediately following treatment, Follow-up at 3-months post-treatment

Conditions

Alzheimer Disease
Dementia
Primary Progressive Aphasia
Aphasia
Progressive Aphasia
Progressive Aphasia in Alzheimer's Disease

Explore related trials

Alzheimer's DiseaseAphasiaDementiaPrimary Progressive Aphasia

Where it's being run

1 sites across 1 states
Texas1

Who to contact

Stephanie M Grasso, PhD
[email protected]
6268648957
Email the study team

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Do you actually qualify for this trial?

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Eligibility criteria

Inclusion

speak Spanish and/or English (although participants may speak other languages in addition to Spanish and/or English)
identify as Hispanic and/or Latinx,
or their spouse/family member with PA identifies as Hispanic and/or Latinx
see and hear well enough to participate
have access to a computer or mobile device with video capability
have an internet connection
Individuals with PA:
Has a diagnosis of PA, or language-led dementia, and aphasia is one of the primary causes of difficulty with activities of daily living
Aware of language difficulties and willing to discuss them
Able to actively engage in group discussion and complete activities with minimal support
Able to regularly attend meetings
Willing to follow the rules of the support group for interacting with others respectfully
Individuals with PA:
Diagnosis of aphasia or dementia that is progressive in nature, and aphasia is one of the primary causes of difficulty with activities of daily living
Have some ability to communicate and understand communication in order to participate in training sessions
Are functionally able to engage in training sessions (e.g., able to maintain some attention, minimal challenging behavior that would cause disruption)
Have a care partner who also consents to participating in the project
Care partners:
Self-identification as a caregiver of an individual with a diagnosis of PA or language-led dementia
Willing to discuss caregiving for individuals with PA/ language-led dementia
Able to regularly attend meetings
Willing to follow the rules of the support group for interacting with others respectfully

What this trial measures

  • Treatment/Acceptability SurveyBaseline, Immediately following treatment, Follow-up at 3-months post-treatment

    In-house Acceptability and Perception of Change Survey