This study is looking at ways to help adolescents and young adults (ages 8-25) with sickle cell disease (SCD) manage their illness and improve their well-being. It's testing a program called "Promoting Resilience in Stress Management" (PRISM) along with a "Collaborative Care Model." PRISM helps with stress management, setting goals, and positive thinking, and is delivered one-on-one by trained coaches. The Collaborative Care Model involves a team meeting weekly to review your needs and offer support. The main goal is to see if these approaches are practical and well-received by patients. Researchers will also explore if they can help reduce depression, anxiety, and pain. You may be able to join if you have SCD, receive care at DFCI/BCH, and have certain scores on anxiety or depression questionnaires. This study plans to enroll 25 participants, but its current status is unclear.

Study design

This is an interventional study that plans to enroll 25 participants. It is testing a behavioral intervention delivered through a collaborative care model.

What's involved

Sessions for the PRISM intervention are delivered every 1-2 weeks based on your preference. The interprofessional team will meet weekly to review survey scores and health needs.

Compensation

Not stated in the trial record.

Follow-up

The primary goal of the study is measured at 3 months.

AI-generated from the public study record. Only the study team can confirm whether you're eligible — confirm details with them before making decisions.