This is an observational study called PREVENT ALL ALS. It's not testing a specific drug or treatment. Instead, researchers are collecting a wide range of information, samples, and measurements from people with Amyotrophic Lateral Sclerosis (ALS), those who carry an ALS gene, and healthy volunteers. The goal is to gather data that will help future research into ALS and related brain diseases. You might be able to join if you are 18 or older and are a first-degree relative (like a parent, child, or sibling) of someone with a known ALS-causing gene or a strong family history of ALS. The study will track ALS symptoms using a questionnaire over 36 months.

Study design

This is an observational study aiming to enroll 600 participants. It is not testing an intervention.

What's involved

You would complete an ALS Symptoms Questionnaire at baseline and then every 4 months for 36 months.

Compensation

Not stated in the trial record.

Follow-up

Participants will be followed for 36 months after baseline.

AI-generated from the public study record. Only the study team can confirm whether you're eligible — confirm details with them before making decisions.