Pediatric Deep Brain Stimulation Registry

This study is creating a registry (a collection of information) about children and teenagers who have received or will receive deep brain stimulation (DBS). DBS is a surgery that places a device in the brain to help control movement disorders. Because there isn't much information about how DBS works in children, this registry will gather data from many hospitals to help researchers understand its safety and effectiveness for conditions like dystonia, epilepsy, cerebral palsy, Tourette syndrome, and obsessive-compulsive disorder. The goal is to improve DBS as a treatment option for young patients. You can join if you are between 0 and 18 years old and have had or are scheduled for DBS for a neurological movement disorder. The study is currently unclear on its recruitment status.

Study design
This is an observational study, meaning researchers will collect information without giving any specific intervention. It plans to enroll 100 participants.
What's involved
Not specified in the trial record.
Compensation
Not stated in the trial record.
Follow-up
The primary goal of developing the registry will be measured at 5 years.

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NCT06585618

A Multicenter Pediatric Deep Brain Stimulation Registry

Recruiting
Not specifiedAges 0–18Observational
Boston Children's Hospital
~100 participants
Updated 2026-03-18 on ClinicalTrials.gov

At a glance

Recruiting sites
1 of 1 listed site is recruiting right now
RecruitingSuspended, closed, or not yet open
What they're measuring
Development of a Multi-Center Pediatric DBS Registry
Measured over 5 years
Dystonia
Epilepsy in Children
Cerebral Palsy
Tourette Syndrome
Obsessive-Compulsive Disorder
Neurologic Disorder
Movement Disorders in Children
Movement Disorders
Deep Brain Stimulation
1 sites across 1 states
Massachusetts1

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Eligibility criteria

Inclusion

Female or male patients between ages of 0-18 years.
Having received or scheduled to receive DBS for any neurological movement disorder.
Parents or legal guardians are able to provide written consent for prospective enrollment.
  • Development of a Multi-Center Pediatric DBS Registry5 years

    This study will define DBS as a therapeutic option for children with dystonia, other hyperkinetic movement disorders, or epilepsy.