Myasthenia Gravis Foundation of America Global MG Patient Registry
This is an observational study, meaning it collects information about people with Myasthenia Gravis (MG) without testing new treatments. The goal is to understand the experiences of people living with MG in the United States. Researchers want to learn about how and when people are diagnosed, common symptoms, treatments used, and how MG impacts daily life, work, and quality of life. They also want to understand experiences with flare-ups (exacerbations), hospitalizations, and getting healthcare. You can join if you are over 18 and have a positive MG diagnosis. The study aims to enroll 3800 participants. Success for this study means gathering a lot of information about MG from many people.
- Study design
- This is an observational study, not testing a specific intervention. It is a longitudinal registry, meaning it collects information over time from participants. The study plans to enroll 3800 participants.
- What's involved
- You will answer a survey to join the study and be invited to fill out an update survey twice a year.
- Compensation
- Not stated in the trial record.
- Follow-up
- Participants will be invited to fill out an update survey twice a year, indicating ongoing follow-up.
AI-generated from the public study record. Only the study team can confirm whether you're eligible — confirm details with them before making decisions.
Myasthenia Gravis Foundation of America Global MG Patient Registry
At a glance
Conditions
Where it's being run
1 sites across 1 statesStudy leadership
- Patient Registry PI · PRINCIPAL_INVESTIGATOR · Yale University
Who to contact
Opens a ready-to-send draft in your own email app — review before sending.
Do you actually qualify for this trial?
Add a private profile and we'll compare every criterion below against your situation — and tell you which ones are met, uncertain, or excluding.
Inclusion
Exclusion
What this trial measures
- Diagnosis of MGAt enrollment
Whether the patient has a confirmed MG diagnosis.