Myasthenia Gravis Foundation of America Global MG Patient Registry

This is an observational study, meaning it collects information about people with Myasthenia Gravis (MG) without testing new treatments. The goal is to understand the experiences of people living with MG in the United States. Researchers want to learn about how and when people are diagnosed, common symptoms, treatments used, and how MG impacts daily life, work, and quality of life. They also want to understand experiences with flare-ups (exacerbations), hospitalizations, and getting healthcare. You can join if you are over 18 and have a positive MG diagnosis. The study aims to enroll 3800 participants. Success for this study means gathering a lot of information about MG from many people.

Study design
This is an observational study, not testing a specific intervention. It is a longitudinal registry, meaning it collects information over time from participants. The study plans to enroll 3800 participants.
What's involved
You will answer a survey to join the study and be invited to fill out an update survey twice a year.
Compensation
Not stated in the trial record.
Follow-up
Participants will be invited to fill out an update survey twice a year, indicating ongoing follow-up.

AI-generated from the public study record. Only the study team can confirm whether you're eligible — confirm details with them before making decisions.

NCT06617741

Myasthenia Gravis Foundation of America Global MG Patient Registry

Recruiting
Not specifiedAges 18+Observational
Myasthenia Gravis Foundation of America
~3,800 participants
Updated 2024-09-27 on ClinicalTrials.gov

At a glance

Recruiting sites
1 of 1 listed site is recruiting right now
RecruitingSuspended, closed, or not yet open
What they're measuring
Diagnosis of MG
Measured over At enrollment
Myasthaenia Gravis
Myasthenia
Myasthenia Gravis Associated with Thymoma
Myasthenia Gravis Crisis
Myasthenia Gravis Exacerbations
Myasthenia Gravis Generalised
Myasthenia Gravis with Exacerbation (Disorder)
Myasthenia Gravis, Adult Form
Myasthenia Gravis, Generalized
Myasthenia Gravis, Ocular
Myasthenia Gravis, Thymectomy
Myasthenia Gravis
Myasthenia Gravis, MuSK
1 sites across 1 states
Massachusetts1
  • Patient Registry PI · PRINCIPAL_INVESTIGATOR · Yale University
National Director, Patient Registry
Email the study team

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Do you actually qualify for this trial?

Add a private profile and we'll compare every criterion below against your situation — and tell you which ones are met, uncertain, or excluding.

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Eligibility criteria

Inclusion

age over 18
positive MG diagnosis

Exclusion

age under 18
misdiagnosed with MG
  • Diagnosis of MGAt enrollment

    Whether the patient has a confirmed MG diagnosis.