This study aims to understand more about Arrhythmogenic Cardiomyopathy with Pathogenic Plakophilin-2 Variants (PKP2-ACM), a type of heart disease, in patients receiving standard care. Researchers will gather information on the signs, symptoms, and important health events related to this condition, as well as how it affects your quality of life. The study will look at your heart rhythm and rate, and certain heart markers (cardiac biomarkers) over 36 months to see how the disease progresses. You may be able to join if you are 12 years or older and have PKP2-ACM. The study plans to include 36 participants.

Study design

This is an observational study that will collect information from your past and also follow you over time. It aims to gather detailed information from 36 participants.

What's involved

Not specified in the trial record.

Compensation

Not stated in the trial record.

Follow-up

Your heart rhythm and rate, and cardiac biomarkers will be measured at 36 months.

AI-generated from the public study record. Only the study team can confirm whether you're eligible — confirm details with them before making decisions.