NCT06664541
Decision-Making and Quality of Life Surrounding Hematologic Disease and Gene Therapy
Enrolling by Invitation
Not specifiedAges 18+ObservationalGeorgetown UniversityInvestigator-initiated
~100 participants
Updated 2024-10-29 on ClinicalTrials.gov
At a glance
Recruiting sites
0 of 1 listed site is recruiting right now
RecruitingSuspended, closed, or not yet open
What they're measuring
Quality of Life
Measured over Past 12 months
Conditions
Where it's being run
1 sites across 1 statesDistrict of Columbia1
Who to contact
This trial hasn't published a contact. View it on ClinicalTrials.gov
Do you actually qualify for this trial?
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Eligibility criteria
Inclusion
adult patients (ages 18+) or parents of pediatric patients (\<age 18) eligible to receive treatment for their disease with gene therapy
Exclusion
Non-English-speaking
What this trial measures
- Quality of LifePast 12 months
Health related quality of life is measured by a modified patient reported outcome measure, the Transfusion-dependent Quality of Life (TranQoL) assessment.