Digital Cognitive Rehabilitation for Sickle Cell Disease

This study is looking at a digital program called Cogmed+ to help children and teenagers with sickle cell disease improve their working memory. Working memory is a type of short-term memory that helps us remember and use information. Many young people with sickle cell disease can have problems with their working memory. Cogmed+ is a home-based program on a tablet that uses fun exercises to train these memory skills. This study wants to see if Cogmed+ is practical and helpful, and if participants will stick with the program. You might be able to join if you are 7 to 16 years old, have sickle cell disease, and have some challenges with your working memory. The study will measure how many participants complete the Cogmed+ training, attend a social event, and participate in memory strategy training.

Study design
This is a single-site pilot study that is not randomized. It plans to enroll 50 participants.
What's involved
You would participate in Cogmed+ training for approximately 5-8 weeks. You would also attend a Cogmed Kickoff social event and participate in memory strategy training.
Compensation
Not stated in the trial record.
Follow-up
The study measures completion of Cogmed training and memory strategy training approximately 5-8 weeks after starting Cogmed. Attendance at a social event is measured within approximately 6 months of enrollment.

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NCT06770010

Advancing Feasibility and Acceptability of Digital Cognitive Rehabilitation in Sickle Cell Disease

Recruiting
NAAges 7–16InterventionalTreatment
Children's National Research Institute
~50 participants
Updated 2025-02-13 on ClinicalTrials.gov
What's tested:Cogmed+

At a glance

Recruiting sites
1 of 1 listed site is recruiting right now
RecruitingSuspended, closed, or not yet open
What they're measuring
Number of participants who complete Cogmed training
Measured over Approximately 5-8 weeks after start of Cogmed training
+2 more outcomes measured
Sickle Cell Disease
1 sites across 1 states
District of Columbia1
  • Steven Hardy, PhD · PRINCIPAL_INVESTIGATOR · Children's National Research Institute

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  • Number of participants who complete Cogmed trainingApproximately 5-8 weeks after start of Cogmed training

    At least 75% of participants will complete 10 or more Cogmed training sessions.

  • Number of participants who attend a Cogmed Kickoff social eventWithin approximately 6 months of study enrollment

    At least 75% of participants will attend a Cogmed Kickoff social event.

  • Number of participants who participate in memory strategy trainingApproximately 5-8 weeks after start of Cogmed training

    At least 75% of participants will complete 2 or more memory strategy training sessions.