Dementia Caregivers' Link to Assistance and Resources (DECLARE) Study
This study, called Dementia Caregivers' Link to Assistance and Resources (DECLARE), is looking at ways to better support caregivers of people with Alzheimer's disease or other dementias. It's for caregivers of patients receiving home health care. The DECLARE program involves a self-assessment for caregivers and increased access to social workers who specialize in dementia care. We want to see if most caregivers will complete the assessment, if the information is helpful to clinicians, and if more caregivers will get social work support. The study plans to include 200 participants, but its current status is unclear.
- Study design
- This is an interventional study comparing the DECLARE program to standard care. It involves 200 planned participants.
- What's involved
- Caregivers will be called to complete a self-assessment. They will also participate in baseline and follow-up telephone surveys.
- Compensation
- Not stated in the trial record.
- Follow-up
- Caregiver Self-Efficacy will be measured at 60 days.
AI-generated from the public study record. Only the study team can confirm whether you're eligible — confirm details with them before making decisions.
Dementia Caregivers' Link to Assistance and Resources
At a glance
Conditions
Where it's being run
1 sites across 1 statesStudy leadership
- Julia G Burgdorf, PhD · PRINCIPAL_INVESTIGATOR · Center for Home Care Policy & Research, VNS Health
Who to contact
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Do you actually qualify for this trial?
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Inclusion
Exclusion
What this trial measures
- Completion rate for DECLARE caregiver assessments7 days
A proportion. Numerator: the number of eligible caregivers who complete the DECLARE assessment. Denominator: the number of eligible caregivers who are contacted and asked to complete the DECLARE assessment at the start of the episode.
- Caregiver Self-Efficacy60 days
Caregiver self-efficacy, as measured by caregiver score on the Caregiver Self-Efficacy (CSE-4) 4-item scale developed by Merrilees, et al (2020).