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Palliative Care Model Impact on Knowledge and Attitudes in MS

This study is looking at how different ways of learning about palliative care (supportive care that helps people with serious illnesses feel better) can affect your understanding and feelings about it. If you have Multiple Sclerosis (MS), Neuromyelitis Optica Spectrum Disorder (NMOSD), or anti-MOG disease, are between 18 and 65, and have been diagnosed for at least two years, you might be able to join. You'll either watch a video about palliative care and advance directives (documents that say what medical care you want in the future) or read written materials. The main goal is to see if these resources change your preferences for neurological care, such as whether you prefer full care or other options, measured after three months.

Study design
This is an interventional study planning to enroll 50 participants. You would be randomly assigned to one of two groups: watching a video or reading an informational sheet.
What's involved
You will be asked about your care preferences at the start, right after the video or reading material, and again by phone after three months.
Compensation
Not stated in the trial record.
Follow-up
Your preferences will be checked again three months after you receive the intervention.

AI-generated from the public study record. Only the study team can confirm whether you're eligible — confirm details with them before making decisions.

NCT06860932

A Palliative Care Model Impact on Knowledge and Attitudes

Recruiting
NAAges 18–65InterventionalSupportive care
Hunter College of City University of New York
~50 participants
Updated 2026-04-22 on ClinicalTrials.gov
What's tested:Palliative care video comprises the conversation and advance directives.Palliative care written material

At a glance

Recruiting sites
2 of 2 listed sites are recruiting right now
RecruitingSuspended, closed, or not yet open
What they're measuring
Palliative care preferences (i.e., care considerations, discontinuation of care, versus continued full care) for neurological care (Aim 1).
Measured over 3 months.

Conditions

Multiple Sclerosis, MS

Explore related trials

Anti-MOG Associated DiseaseMultiple SclerosisNeuromyelitis Optica

Where it's being run

2 sites across 1 states
New York2

Who to contact

Aliza Ben-Zacharia, PhD
[email protected]
6462262616
Email the study team

Opens a ready-to-send draft in your own email app — review before sending.

Do you actually qualify for this trial?

Add a private profile and we'll compare every criterion below against your situation — and tell you which ones are met, uncertain, or excluding.

Check eligibility for this trial ~2 min · HIPAA-protected · delete anytime
Eligibility criteria

Inclusion

Diagnosed with MS, NMOSD, or anti-MOG, at least 2 years after their diagnosis.
Aged 18-65
Speak English since all instruments are available in English.

Exclusion

Visually impaired (note, hearing impaired is not an exclusion criterion as the video is closed captioned).
Psychological state not appropriate for PC discussions as determined by the Patient Health Questionnaire 9 (PHQ9).
A score of 11 or higher, indicative of major depressive disorder, will be referred to immediate management and excluded from the study.
Unable to participate in PC discussions due to cognitive impairment as determined by the Processing Speed Test (PST) score below -1.5 Z score.

What this trial measures

  • Palliative care preferences (i.e., care considerations, discontinuation of care, versus continued full care) for neurological care (Aim 1).3 months.

    The patient treatment preferences (i.e., care considerations, discontinuation of care, versus continued full care) for neurological care. The preferences will be measured based on a questionnaire asking patients about their preferences after viewing the PC video or reading the written material.