Validating a Myasthenia Gravis Screening Program
This study is looking for adults across the United States who have undiagnosed muscle weakness or fatigue. It's a remote study, meaning you can participate from home. The main goal is to see how well a self-assessment tool works at identifying people who might have myasthenia gravis (MG), a condition that causes muscle weakness. You'll be recruited through social media and asked to complete online surveys and simple physical tests at home. If the tests suggest you might have MG, you'll be encouraged to see a doctor for further evaluation. This study builds on a previous one that successfully helped diagnose MG in some participants. The study aims to enroll 1000 people, but its current recruitment status is unclear.
- Study design
- This is a remote, observational study aiming to enroll 1000 participants. It is not a drug trial but rather validates a screening program.
- What's involved
- You will complete online surveys and self-administered physical tests. If recommended, you will follow up with a clinician.
- Compensation
- Not stated in the trial record.
- Follow-up
- The primary endpoint, self-assessment tool validity, is measured at 6 months from enrollment.
AI-generated from the public study record. Only the study team can confirm whether you're eligible — confirm details with them before making decisions.
Validation and Scaling of Screening Program for Undiagnosed Myasthenia Gravis-Social Media Campaign Paired With a Self-moderated Assessment
At a glance
Conditions
Where it's being run
1 sites across 1 statesWho to contact
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Do you actually qualify for this trial?
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Inclusion
Exclusion
What this trial measures
- Self-Assessment tool validity6 months from time of enrollment
Measure the specificity and sensitivity of the Self-Assessment tool