Understanding Genetic Testing in Leiomyosarcoma
This study is for people with leiomyosarcoma (a rare cancer of smooth muscle tissue) and their family members. Researchers want to understand your beliefs and feelings about how leiomyosarcoma might be passed down in families and about genetic testing. They are also looking at how patients and families react to receiving genetic test results, especially if a change in the TP53 gene (a gene linked to cancer risk) is found. This study aims to help doctors better incorporate genetic testing into care for leiomyosarcoma patients. About 300 people are expected to join.
- Study design
- This is an observational study, meaning researchers will gather information without giving any specific treatments. It plans to include about 300 participants.
- What's involved
- Not specified in the trial record.
- Compensation
- Not stated in the trial record.
- Follow-up
- Your beliefs about leiomyosarcoma heritability will be measured up to one day from joining the study.
AI-generated from the public study record. Only the study team can confirm whether you're eligible — confirm details with them before making decisions.
Beliefs, Attitudes, and Response to Genetic Testing in SarcomaPatients
At a glance
Conditions
Where it's being run
1 sites across 1 statesWho to contact
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What this trial measures
- Beliefs about the heritability of Leiomyosarcomaup to 1 day from study enrollment
This outcome will report the count of participants who self-reported a strong belief in heritability. Participants who responded on a questionnaire that sarcoma is somewhat or highly heritable are considered to have a strong belief in heritability. This outcome measure will be assessed on Day 1 of the study.