Understanding Financial Hardship in Alzheimer's Disease and Dementia
This study is looking into the financial challenges faced by people with Alzheimer's disease (AD) and related dementias (ADRD), as well as their caregivers. It aims to develop tools to help identify and measure financial hardship, which includes financial strain, stress, and loss of assets. Researchers will conduct interviews and surveys to understand how AD/ADRD impacts finances, what causes these difficulties, and how people cope. The goal is to create better ways to screen for financial hardship. You can participate if you are an adult (18+) with AD/ADRD or a caregiver for someone with AD/ADRD, live in the United States, and can speak English or Spanish. The study plans to enroll 2460 participants and is currently active, though its specific status is unclear.
- Study design
- This is an observational study, meaning researchers will gather information without providing any specific treatments. It plans to include 2460 participants.
- What's involved
- You would participate in semi-structured interviews, which can be done virtually, by phone, or in person. You may also complete surveys.
- Compensation
- Not stated in the trial record.
- Follow-up
- The study measures will be taken at various points, from 6 months up to 42 months (3.5 years) after the study begins.
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Development of Measures to Screen for Financial Hardship in Alzheimer's Disease and Dementia
At a glance
Conditions
Where it's being run
1 sites across 1 statesStudy leadership
- Salene MW Jones, PhD, MA · PRINCIPAL_INVESTIGATOR · Fred Hutchinson Cancer Center
Who to contact
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Do you actually qualify for this trial?
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Inclusion
What this trial measures
- Thematic Analysis of Qualitative Interviews to Inform Measure DevelopmentMonth 6 to Month 18 of the study
Qualitative interviews with patients and caregivers will be conducted and analyzed using a framework analysis approach. Interview data will be used to refine our conceptual model of financial hardship (Jones et. al 2024). The unit of measure will be the number of major thematic categories identified through qualitative analysis and the number of conceptual domains established in the finalized model.
- Internal Consistency of Financial Hardship Item BanksAt initial survey administration (approximately Month 19 to month 42 of the study)
Internal consistency of the financial hardship item banks will be evaluated using Cronbach's alpha for each domain. The unit of measure will be the alpha coefficient (range 0-1), with higher values indicating greater internal consistency.
- Construct Validity of Financial Hardship Item BanksAt initial survey administration (approximately Month 19 to month 42 of the study)
Construct validity will be assessed by examining correlations between financial hardship scores and related constructs, such as quality of life, stress, and social connectedness. The unit of measure will be Pearson or Spearman correlation coefficients (range -1 to 1). The direction and strength of these correlations will be used to evaluate convergent validity.
- Item-Level Performance Using Item Response TheoryAt initial survey administration (approximately Month 19 to month 42 of the study)
Item-level performance for each financial hardship item bank will be assessed using item response theory (IRT) modeling. The unit of measure will be the discrimination (slope) and severity (threshold) parameters, reported for each item individually.