Always Uniquely Me App for Emergency Department Visits

This study is looking at whether a mobile app called Always Uniquely Me can help people with intellectual and developmental disabilities (PWIDD) have better experiences and reduce the need for restraints during emergency department (ED) visits. The app helps you organize your healthcare information and personal needs to improve communication with medical staff. Researchers want to see if using this app, compared to usual medical care, can lower the use of physical or chemical restraints during ED visits. They will also look at how different characteristics of PWIDD might affect these results. You may be able to join if you are 18 or older, have an intellectual or developmental disability, have visited a Northwell Health ED in the last year, have a smartphone or tablet with internet, and speak English. The study aims to enroll 1500 participants.

Study design
This interventional study compares the Always Uniquely Me mobile application to regular medical care. It plans to enroll 1500 participants.
What's involved
Not specified in the trial record.
Compensation
Not stated in the trial record.
Follow-up
The primary outcome, use of restraints, will be measured at 12 months.

AI-generated from the public study record. Only the study team can confirm whether you're eligible — confirm details with them before making decisions.

NCT06986863

Use of a Digital Snapshot to Reduce Use of Restraints During Emergency Department Visits and Improve Experience of Care for PWIDD

Recruiting
NAAges 18+InterventionalHealth services
Northwell Health
~1,500 participants
Updated 2026-05-19 on ClinicalTrials.gov
What's tested:Always Uniquely Me mobile phone application

At a glance

Recruiting sites
1 of 1 listed site is recruiting right now
RecruitingSuspended, closed, or not yet open
What they're measuring
Use of physical and/or chemical restraints during ED visits
Measured over 12 months
Intellectual and Developmental Disabilities
1 sites across 1 states
New York1
Sophia Jan Division Chief, MD, MSHP
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Eligibility criteria

Inclusion

have visited a Northwell Health Emergency Department in the last 12 months
have a confirmed intellectual and/or developmental disability
must be 18 years of age or older at enrollment
have a smart phone or tablet that connects to the internet
have a preferred language of English
  • Use of physical and/or chemical restraints during ED visits12 months

    Measured using electronic medical record data.