Understanding Decision-Making Preferences in Young People with Cancer
This study is looking at how adolescents and young adults (ages 15-29) with cancer prefer to be involved in decisions about their treatment. It uses something called "Clinical Decision-Making Scenarios and Preferences Assessment" where you'll answer questions about hypothetical situations to see if you prefer to be actively involved, work together with your care team, or have others make decisions for you. We want to understand what influences these choices. You can join if you have a cancer diagnosis and are currently on therapy, at the end-of-life stage, or a survivor within the last year. You also need to be able to speak and read English. The main goal is to find out the different ways young people want to make decisions. The study is currently unclear on its recruitment status and plans to enroll 100 participants.
- Study design
- This is an interventional study that plans to include 100 participants. It uses a mixed-methods approach to understand decision-making preferences.
- What's involved
- You would complete a socio-demographic questionnaire and a decision-making preferences scale, which includes hypothetical clinical scenarios. This is expected to take place within two weeks of receiving the survey link.
- Compensation
- Not stated in the trial record.
- Follow-up
- Your decision-making roles in clinical scenarios will be measured within two weeks of survey link delivery.
AI-generated from the public study record. Only the study team can confirm whether you're eligible — confirm details with them before making decisions.
Adolescents and Young Adults With Cancer: Their Preferred Involvement in Decision Making
At a glance
Conditions
Where it's being run
1 sites across 1 statesStudy leadership
- Kimberly Pyke-Grimm · PRINCIPAL_INVESTIGATOR · Stanford University
Who to contact
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Do you actually qualify for this trial?
Add a private profile and we'll compare every criterion below against your situation — and tell you which ones are met, uncertain, or excluding.
Inclusion
Exclusion
What this trial measures
- Distribution of Decision-Making Roles in Clinical ScenariosWithin 2 weeks of survey link delivery
Proportion of participants who select an active, collaborative, or passive role in hypothetical clinical decision-making scenarios. Each role will be counted and compared across participant subgroups.