Understanding Decision-Making Preferences in Young People with Cancer

This study is looking at how adolescents and young adults (ages 15-29) with cancer prefer to be involved in decisions about their treatment. It uses something called "Clinical Decision-Making Scenarios and Preferences Assessment" where you'll answer questions about hypothetical situations to see if you prefer to be actively involved, work together with your care team, or have others make decisions for you. We want to understand what influences these choices. You can join if you have a cancer diagnosis and are currently on therapy, at the end-of-life stage, or a survivor within the last year. You also need to be able to speak and read English. The main goal is to find out the different ways young people want to make decisions. The study is currently unclear on its recruitment status and plans to enroll 100 participants.

Study design
This is an interventional study that plans to include 100 participants. It uses a mixed-methods approach to understand decision-making preferences.
What's involved
You would complete a socio-demographic questionnaire and a decision-making preferences scale, which includes hypothetical clinical scenarios. This is expected to take place within two weeks of receiving the survey link.
Compensation
Not stated in the trial record.
Follow-up
Your decision-making roles in clinical scenarios will be measured within two weeks of survey link delivery.

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NCT07035418

Adolescents and Young Adults With Cancer: Their Preferred Involvement in Decision Making

Recruiting
NAAges 15–29InterventionalSupportive care
Stanford University
~100 participants
Updated 2026-02-27 on ClinicalTrials.gov
What's tested:Clinical Decision-Making Scenarios and Preferences Assessment

At a glance

Recruiting sites
1 of 1 listed site is recruiting right now
RecruitingSuspended, closed, or not yet open
What they're measuring
Distribution of Decision-Making Roles in Clinical Scenarios
Measured over Within 2 weeks of survey link delivery
Adolescent Behavior
1 sites across 1 states
California1
  • Kimberly Pyke-Grimm · PRINCIPAL_INVESTIGATOR · Stanford University

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Do you actually qualify for this trial?

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Eligibility criteria

Inclusion

Age (15-29 years)
Cancer diagnosis and on therapy, end-of-life or survivors (within 1 year)
Speaks English
Reads English
Cognitively and physically able to participate

Exclusion

Unable to participate in study due to developmental delay or developmental disorder
  • Distribution of Decision-Making Roles in Clinical ScenariosWithin 2 weeks of survey link delivery

    Proportion of participants who select an active, collaborative, or passive role in hypothetical clinical decision-making scenarios. Each role will be counted and compared across participant subgroups.