This study, called The LIFT-ECHO Last Mile Project, is looking at how well a virtual learning program, LIFT-ECHO (Learn Intestinal Failure Tele-ECHO), helps patients with chronic intestinal failure (CIF) feel better. LIFT-ECHO teaches doctors who aren't specialists how to better care for patients with CIF who are on parenteral nutrition (PN), which is nutrition given through a vein. The study compares patients whose doctors use LIFT-ECHO to those whose doctors provide standard care. We want to see if LIFT-ECHO improves your quality of life, as measured by a Patient-Reported Quality of Life (PRQOL) Score. This study is currently unclear on its recruitment status and aims to enroll 150 participants. You can join if you are 18 or older with CIF, or if you are a child aged 5 or older with CIF and have parental consent.

Study design

This interventional study involves at least 150 groups of doctors, each with at least one patient. Doctors will be randomly assigned to either start with standard care or the LIFT-ECHO program, then switch to the LIFT-ECHO program later.

What's involved

Not specified in the trial record.

Compensation

Not stated in the trial record.

Follow-up

Your quality of life will be checked at the start of the study, at 6 months, and again at 12 months.

AI-generated from the public study record. Only the study team can confirm whether you're eligible — confirm details with them before making decisions.