Pediatric Radiation Therapy Registry for Sarcoma and Brain Tumors
This registry is collecting information from pediatric patients (ages 0-26) who receive either proton or photon radiation therapy for sarcoma or pediatric brain tumors. The goal is to understand the long-term effects and side effects (toxicity) of these treatments. Researchers will look at how long patients live (Overall Survival) and the number of side effects over about 10 years. This study is observational, meaning you won't receive a new treatment, but your existing treatment information will be collected to help improve care for future patients. The study aims to include 5000 participants, but its current recruitment status is unclear.
- Study design
- This is an observational study, meaning it collects information without assigning new treatments. It plans to include up to 5000 participants.
- What's involved
- Not specified in the trial record.
- Compensation
- Not stated in the trial record.
- Follow-up
- Participants will be followed for approximately 10 years to assess overall survival and toxicity.
AI-generated from the public study record. Only the study team can confirm whether you're eligible — confirm details with them before making decisions.
Pediatric Radiation Therapy Registry
At a glance
Conditions
Where it's being run
2 sites across 2 statesStudy leadership
- Sahaja Acharya, MD · PRINCIPAL_INVESTIGATOR · SKCCC Johns Hopkins Medical Institution
Who to contact
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Do you actually qualify for this trial?
Add a private profile and we'll compare every criterion below against your situation — and tell you which ones are met, uncertain, or excluding.
Inclusion
Exclusion
What this trial measures
- Overall SurvivalApproximately 10 years
Measured from date of diagnosis until death, obtained from medical record notes
- Toxicity due to Radiation Therapy as assessed by number of patients with adverse eventsApproximately 10 years
The number of patients that experience adverse events, obtained from medical record notes