Centering Autistic Perspectives in Behavioral Intervention Discussions
This study, called CAPBID, aims to improve how autistic people, Applied Behavior Analysis (ABA) providers, and other members of the autism community talk about research priorities for ABA. It will test two different approaches: the Transformative and Restorative Engagement Circle (TREC) and the Stakeholder Engagement in quEstion Development and prioritization (SEED) Method. The goal is to find the best ways to create shared understanding and trust, especially since some autistic adults have concerns about ABA. The study will measure how engaged participants are and how well they work together to set priorities. You might be able to join if you are an adult over 18, have experience with ABA (either as an autistic individual or a practitioner), and can speak English fluently. The study plans to enroll 200 people, but its current recruitment status is unclear.
- Study design
- This is an interventional study that plans to enroll 200 participants. It will compare two different engagement approaches: TREC and SEED.
- What's involved
- You would participate in an engagement approach (either TREC or SEED). Your engagement will be measured at the start, during, and up to 24 hours after the intervention.
- Compensation
- Not stated in the trial record.
- Follow-up
- Your engagement will be assessed up to one day after the start of the intervention and up to 24 hours after its completion.
AI-generated from the public study record. Only the study team can confirm whether you're eligible — confirm details with them before making decisions.
Centering Autistic Perspectives in Behavioral Intervention Discussions
At a glance
Conditions
Where it's being run
1 sites across 1 statesStudy leadership
- Matthew D Lerner, PhD · PRINCIPAL_INVESTIGATOR · Drexel University
- Dena L Gassner, PhD · PRINCIPAL_INVESTIGATOR · Drexel University
Who to contact
Opens a ready-to-send draft in your own email app — review before sending.
What this trial measures
- Brief Engagement PollUp to one day after the start of the intervention (engagement approach) delivery and up to 24 hours after completion of the intervention (engagement approach) delivery
3-item poll indicating perceived quality ("ability to engage you as a member of our team in the meeting"), value ("Was today's meeting a good use of your time"), and contribution ("To what extent did you contribute to project-related processes") to the process, developed for autistic research partnerships by AASET
- ABX Stakeholder ToolkitAt baseline, up to one day after the start of the intervention (engagement approach) delivery and up to 24 hours after the completion of the intervention (engagement approach) delivery
Likert-type measure, with items including, "The study values the differences of contributing stakeholders," "I feel the study team has a clear understanding of stakeholders' expertise, strengths, and roles," "study stakeholders engage in open communication and demonstrate a willingness to listen to others," "My fellow stakeholder participants respect what I have to say, even when they do not agree with me." (post-engagement trust) "Participating in these activities has helped me better understand research on \[this topic\]," (sense of agency) "Individuals whose lives are most impacted by \[this topic\] are well represented," "I have decision-making authority and believe I contribute meaningfully to relevant outcomes and objectives for the study," "I feel that I have been compensated appropriately for my time and expertise as a stakeholder," "I have learned a lot from participating in these activities," "I feel I could explain the ABX study to others." (sense of buy-in)
- Genetic Alliance Engagement Assessment ToolAt baseline, up to one day after the start of the intervention (engagement approach) delivery and up to 24 hours after the completion of the intervention (engagement approach) delivery
Quantitative engagement metrics, including the degree to which "stakeholders report satisfaction in involvement in the research process and feel adequately informed about the project activities and results," and "Stakeholders report that the research is valuable to them and that they have contributed to setting and revising project priorities." as well as self-report items such as "A sense of partnership among team members and investigators has been established," "All team members are given equal opportunity to provide input," "Input from team members is incorporated into the decision-making process," and "There is clear communication about how input from team members is incorporated into decisions."