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Comprehensive Care for Adolescent and Young Adult Cancer: Needs Assessment Survey

This observational study aims to understand the educational needs of adolescents and young adults (ages 15-39) who have been diagnosed with cancer. The study uses a survey with questionnaires to gather information about your cancer treatment and follow-up care, fertility preservation, participation in clinical trials, and general information like education on health topics, gender, sexual orientation, and perceived needs for resources and support. The goal is to identify gaps in education about topics like exercise, sexual health, financial issues, and relationships. You can join if you were diagnosed with cancer between ages 15-39 and have received or are receiving cancer-directed treatment (like chemotherapy or immunotherapy) at a participating center.

Study design
This is an observational study with a planned enrollment of 300 participants. It is designed to describe the current needs of adolescents and young adults with cancer.
What's involved
You will be asked to complete a series of questionnaires about your cancer experience and needs.
Compensation
Not stated in the trial record.
Follow-up
The primary endpoints, Deficits in Education and Preferred Format for Education, are measured at study enrollment.

AI-generated from the public study record. Only the study team can confirm whether you're eligible — confirm details with them before making decisions.

NCT07196241

Comprehensive Care for AYA: Needs Assessment Survey

Recruiting
Not specifiedAges 15+Observational
Wake Forest University Health Sciences
~300 participants
Updated 2026-08-27 on ClinicalTrials.gov
What's tested:Survey using a questionnaire.

At a glance

Recruiting sites
2 of 2 listed sites are recruiting right now
RecruitingSuspended, closed, or not yet open
What they're measuring
Deficits in Education
Measured over At study enrollment
+1 more outcome measured

Conditions

Cancer
Young Adult Cancer
Adolescent Cancer

Explore related trials

Malignant Neoplasm

Where it's being run

2 sites across 1 states
North Carolina2

Study leadership

  • Anne Wofford, MD · PRINCIPAL_INVESTIGATOR · Atrium Health Wake Forest Baptist

Who to contact

Anne Wofford, MD
[email protected]
336-716-3684
Email the study team

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Do you actually qualify for this trial?

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Eligibility criteria

Inclusion

Individuals diagnosed with cancer between the ages of 15-39 per self-report. Participants may be enrolled at any age provided diagnosis was between ages 15-39.
Individuals who have received or are receiving cancer-directed treatment (chemotherapy, immunotherapy, surgery and/or radiation) at one of the participating centers per self-report.

Exclusion

Severe emotional distress or anxiety that would limit compliance with study requirements per self-report.

What this trial measures

  • Deficits in EducationAt study enrollment

    The general information survey collects data on participants surrounding education on health-related topics, gender, and sexual orientation, as well as perceived needs for resources, support areas, programs and activities. The general information survey contains 12 items. There is no formal statistical analysis to be performed only summary statistics on completed survey items for observation thus there is no scoring needed or range of scores. Results will be observed using descriptive statistics. Due to the categorical nature of all variables, results will be reported in frequencies and percentages.

  • Preferred Format for EducationAt study enrollment

    The General Information Survey collects data on participants surrounding education on health-related topics, gender, and sexual orientation, as well as perceived needs for resources, support areas, programs and activities. The general information survey contains 12 items. There is no formal statistical analysis to be performed only summary statistics on completed survey items for observation thus there is no scoring needed or range of scores. Results will be observed using descriptive statistics. Due to the categorical nature of all variables, results will be reported in frequencies and percentages.