SUPPORT-T for Progressive Pulmonary Fibrosis and Caregivers
This study is testing a digital program called SUPPORT-T for people with Progressive Pulmonary Fibrosis (PPF) and their caregivers. PPF is a lung disease that gets worse over time. SUPPORT-T is a palliative care program, which means it focuses on improving comfort and quality of life. The program includes a 9-week digital app guided by a nurse and virtual support groups. We want to see if SUPPORT-T is easy to use, helpful, and accessible. You might be able to join if you are an adult (18 or older) with confirmed PPF and speak English or Spanish. Your caregiver can also join if they are an adult who provides you with support and speaks English. The study will measure how well people are prepared for their disease at 10 months. The current status of this study is unclear, but it plans to enroll 170 participants.
- Study design
- This is a pilot randomized controlled trial, meaning participants will be assigned by chance to either receive the SUPPORT-T program or enhanced usual care. It aims to enroll 170 participants.
- What's involved
- If you participate, you will receive the SUPPORT-T Educational Intervention biweekly through telehealth visits for 1-4 visits, and then biweekly contact from a nurse. The intervention includes a 9-week digital application and quarterly virtual support groups over one year.
- Compensation
- Not stated in the trial record.
- Follow-up
- The study will measure outcomes at 10 months after the intervention begins.
AI-generated from the public study record. Only the study team can confirm whether you're eligible — confirm details with them before making decisions.
SUPPORT-T in Patients With Progressive Pulmonary Fibrosis and Their Caregivers
At a glance
Conditions
Where it's being run
1 sites across 1 statesWho to contact
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Do you actually qualify for this trial?
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Inclusion
What this trial measures
- Feasibility of Disease Preparedness10 months
Feasibility outcomes include number of participants recruited weekly, number of participants who declined, and number of participants who did not meet eligibility requirements, data collection procedures, and participant responses. Feasibility data will inform future studies on approaches for recruitment and retention, study procedures, and timing and participant capacity to complete surveys/interviews.
- Disease Preparedness Feasibility10 months
Feasibility outcomes include number of participants recruited weekly, number of participants who declined, and number of participants who did not meet eligibility requirements, data collection procedures, and participant responses. Feasibility data will inform future studies on approaches for recruitment and retention, study procedures, and timing and participant capacity to complete surveys/interviews.